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Cerebral amyloid angiopathy

Stroke & Cerebrovascular Diseases | Last Active: Jul 15 6:48pm | Replies (116)

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@prochef1967

sorry i don't have any answer, but maybe you can help my wife was told of the same problem just 2 days ago info seems to be hard to find thanks from oconomowoc wisconsin

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Replies to "sorry i don't have any answer, but maybe you can help my wife was told of..."

Just to let you know it sounded like an imminent death sentence,but it seems like it can go on for a while.I heard from another lady that
her mother had 2 bleeds in 2008 and now at 81 has moved into a nursing home.Has your wife mostly returned to normal?My wife seems to be doing fine and then she has a small bleed I think?and gets a little confused but slowly comes back to almost normal.

Welcome to Connect, @prochef1967
It can be a shock to receive a diagnosis of cerebral amyloid angiopathy, but as @gbiffart said, it progresses slowly. I'd also like to invite @sistertwo and @dino54 into this discussion to share their experiences.

Prochef1967, Do you have family near by to help support you and your wife?

is far as i know my wife has no evidence of bleeds only the small clots in place .this is brand new and i've yet to visit with her doc

yes i would welcome any insight. as far as nearby help, not sure. she is not comfortable with sharing this with anyone at the moment until we are more knowledgable

We, too, don't opening discuss our mom's condition with people. Allowing her to retain her dignity is important to her and to us. It is, however, turning into being a problem by not being more open and honest. They know she has CAA, but still believe Mom's words when she says she does everything on her own and that she is well enough to move home, but us rotten kids won't let her. On the other hand, we shouldn't have to advertise that she flushes clothing items down the toilet, and has become a master at lies. Her favorite pastime is gabbing on the phone and she has to have something to talk about! LOL She is not likely ever going to be able to live on her own, but we keep the house for her so she has something positive to dream about. However, she often can't find her way from one room to another. She needs 24 hour care.
I wrote more about her/our experience below.