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@sueinmn

This is a very rare condition. Can you share his age, symptoms and whether the doctors have made any suggestions for seeking treatment?
Sue

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Replies to "This is a very rare condition. Can you share his age, symptoms and whether the doctors..."

He is 35 years young and he was vented and in an induced coma for 3 days in the Nero ICU until they started him on 1000mg of steroids and 5 plasma transfers over a period of 10 days. He’s home now and will follow up with his neurologist Tuesday. He had a spinal tap and they did over a 100 lab test. Everyone has come back negative so far. Waiting on 12 more to come back. Protein count is slightly high and high white count. We are praying it will disappear as fast as it came on.