Time to give up? Mourn and accept new health reality?
As each day brings new limitations, I think it is irrational for me to continue to reach out to sustain the way of life I had. Is it really that bad to retreat to the world of books,gardening,music,etc instead of an outward looking way of life?
Interested in more discussions like this? Go to the Neuropathy Support Group.
@keeptrying
I'm glad you work with hospice. I was a volunteer visitor for several years with the local hospice, but I had to resign not too long ago because they made new guidelines and I didn't want to make my service dog a therapy dog. My dog is always with me, and all the patients I visited looked forward to seeing her as much as seeing me. There were a few places my dog didn't go because of other pets in the home, but otherwise I never had a patient who didn't want to see both of us. I was sorry to have to give up my job. I enjoy visiting people. It's good therapy for me, almost as much as for them.
Jim
I'm 87 & have had a very trying 6 mos - husband with broken hip & me with a number of coincident difficulties. And no - it isn't bad to go to where you find peace & comfort. You may want to add a few trusted friends to your mix of books & music & gardening. Wish I knew you - I'm in similar space right now - but not unhappy except when I can't get pain under control. (still working on that) Shalom Superwife.
I just read this post again today. How grateful I am for this site when I get to it. Your posting in particular was very kind and had a little bit of the "Snap out of it!" moment that is instructive. I have been doing the battle of acceptance vs giving up for too long ( according to friends,lucky) and I take it seriously. I am learning too slowly! The measure of our value is not ten,twenty plus years ago. It is today. Today someone helped me, more importantly I managed to help someone else. Grateful to hear your voice.
I will leave this site today . At 59, as I watch my legs and hands disappear, I am retreating to my photography, few friends and meds. I have found that tramadol let's me lift my legs and klonopi n helps them both smoothly on a good day. I know I will be in a wheelchair 65 to 68. This is death . I will find what not I can til then. This site searches for solutions that do not exist. Goodbye Mayo.
If you happen to have more right side damage, it is easier to accept. Generally people live without knowing the pain of untold proportions. Left side and Frontal Lobe damage have differences. I have a Diffuse Axonal Brain Injury. again it is as different as your brain injury.
I am thrilled for you if you don’t grieve.
You have to do what you are able to do. I have to push myself everyday to get our of the house every day.
Some days that is easier said then done!
We have several all White Squirrels on our block! I feed them peanuts in their shells but causing quite a mess on the sidewalk. Still...worth it.
I have neuropathy in my feet from chemo. (Taxol) Some of us are loners and being around people doesn't matter so much. I'm lucky that I have friends and family that love me. I live out in the country alone and with numb feet can't drive. But, I know how lucky I am to have my view be of majestic oak trees and hills, humming birds and squirrels. I'm 80 and Gabapentin actually gives me happy flashes. Treatment for breast cancer was a bummer, but I feel lucky to still be here. I learned that coloring greeting cards with gel pens is so soothing; my cats drive me nuts jumping on my creations, but it is very enjoyable.
I have a lake home in the country . I love the view and the animals. You are a lucky lady. God bless you.