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Doctor Recommendations for Chronic active Epstein–Barr virus (CAEBV)
Infectious Diseases | Last Active: Nov 15 11:28am | Replies (48)Comment receiving replies
There is no way to tell what the survival rate is for any specific illness, as there are many forms of each one, as well as the general health of each patient. And there are treatments being developed or improved every year to treat previously incurable conditions. One of our member mentors, @merpreb, is a 27 year survivor of lung cancer.
You have not mentioned when you were diagnosed and what your current symptoms are. Do you have Chronic Active Epstein-Barr Virus (CAEPV) or intermittent recurring EBV? Are you under the care of a doctor for this?
Sue
Replies to "There is no way to tell what the survival rate is for any specific illness, as..."
@sueinmn I was diagnosed with EBV roughly 10 years ago. Also now in Stage 4 kidney failure. I also get told there is no treatment for it, but have developed extreme sensitivity to heat and also have CFS. I take a lot of vitamins which seem to help some with the CFS but there are times when I still sleep 16 hour days. Last year my dr found that my blood tests showed my light chains were off, and I also tested + for SGA (Schogrens A but not B strain). Went to specialist for that and was told no It was a false +. so again no answers. I too have a lot of teeth pain that comes and goes with no explanation. I see a chiropractor regularly to help with my jaw and neck and back pain.I have been doing lots of googling and saw an article that stated EBV was in the same family as the herpes virus (cold sores), which I also have. Yet there is a treatment for that with Zovirax, so wondering if that would/could help with EBV? Plan to ask my dr that next visit. Really tired of not being able to do anything much like I used to do.
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Hi Sue,
Please tell me, what are the diagnostic criteria to be diagnosed with CAEPV or intermittent recurring EBV? Do "they" use the EBV EA-D IGG antibody test? I asked for that test and my number is >150. I am waiting to get an appointment with an infectious disease doc in my area. I feel like they won't know anything about this anyway...we'll see.