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New GI patient with questions as I prepare for Mayo! ❤️

Posted by kista77 @kista77, Feb 23, 2022

Hi everyone,
I am so happy to be here! I have a new patient appointment with Gastroenterology the end of March. I will be driving from Maryland to Minnesota. I have lost almost 80 pounds in a year and a half and have inflammation in small intestine that they do not believe is from ibd. Been on prednisone since the end of November. Finally down to 20mg as of 3 weeks ago but symptoms are slowly coming back and my joint pain is so much worse. Looking forward to my visit and praying that they figure out what is wrong with me. I feel confident that they will 🙏🏼😭 any suggestions or advice if you are willing to share would be appreciated. Thank you so much!

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kista77 | @kista77 | Mar 3, 2022
In reply to @nikkipooh79 "Hi! I have my first appointment in march and she said to plan for 5-7 days..." + (show)
@nikkipooh79

Hi! I have my first appointment in march and she said to plan for 5-7 days of testing. My first question…do they do testing on the weekends? Or are we talking 5-7 business days? Also…is there anything you did or wish you had done for your appointment that I should make sure to do? Background:
I was diagnosed with Crohns 18 months ago, but have unexplainable pain and gas combined with constipation almost constantly. Always worse when I eat. My dr doesn’t like the look of my scans and he feels there is something mechanical or motility wise going on. But the surgeon refused to do exploratory surgery so he referred me to Mayo. I’m really hoping to get some answers and get my life back! 🥺🥺

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I have my first appt with GI too the end of this month. My letter said 5-7 business days. Praying that they find out what’s causing your symptoms.

REPLY
kista77 | @kista77 | Mar 3, 2022
In reply to @johnbishop "Hi @kista77, The Fairfield Inn & Suites does have a complementary Mayo Clinic shuttle. They are..." + (show)
@johnbishop

Hi @kista77, The Fairfield Inn & Suites does have a complementary Mayo Clinic shuttle. They are about 2 miles from the Mayo Clinic buildings downtown and close to the Hwy 52 and Hwy 14 interchange.

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Thank you so much John!

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ken82 | @ken82 | Mar 4, 2022
In reply to @nikkipooh79 "Hi! I have my first appointment in march and she said to plan for 5-7 days..." + (show)
@nikkipooh79

Hi! I have my first appointment in march and she said to plan for 5-7 days of testing. My first question…do they do testing on the weekends? Or are we talking 5-7 business days? Also…is there anything you did or wish you had done for your appointment that I should make sure to do? Background:
I was diagnosed with Crohns 18 months ago, but have unexplainable pain and gas combined with constipation almost constantly. Always worse when I eat. My dr doesn’t like the look of my scans and he feels there is something mechanical or motility wise going on. But the surgeon refused to do exploratory surgery so he referred me to Mayo. I’m really hoping to get some answers and get my life back! 🥺🥺

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I've only gone to Mayo MN.. saw Dr.Halland for several years, but he is gone now to Australia.. He tested GI things 3 times in the first day (I did blood and urine the evening before at a satellite Mayo in NW Rochester .

REPLY
lasirvent | @lasirvent | Mar 5, 2022
In reply to @nikkipooh79 "Hi! I have my first appointment in march and she said to plan for 5-7 days..." + (show)
@nikkipooh79

Hi! I have my first appointment in march and she said to plan for 5-7 days of testing. My first question…do they do testing on the weekends? Or are we talking 5-7 business days? Also…is there anything you did or wish you had done for your appointment that I should make sure to do? Background:
I was diagnosed with Crohns 18 months ago, but have unexplainable pain and gas combined with constipation almost constantly. Always worse when I eat. My dr doesn’t like the look of my scans and he feels there is something mechanical or motility wise going on. But the surgeon refused to do exploratory surgery so he referred me to Mayo. I’m really hoping to get some answers and get my life back! 🥺🥺

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I had a lot of digestive issues and extreme epigastric pain, trouble eating and lost 30 pounds. After a million tests, someone on this site suggested mals -a vascular compression syndrome. There’s a great Facebook group-Mals Awareness. Mayo and all my other doctors- gi, vascular, internist, primary, and a few more never found it . Hope you find answers.

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puliver1337 | @puliver1337 | Mar 5, 2022
In reply to @rozy288 "No , no reason to go back to Mayo . The New Gastro Dr I got..." + (show)
@rozy288

No , no reason to go back to Mayo . The New Gastro Dr I got , did 2 televisits . Other people abs Dr. Did the 3 diff tests .
Had another 2 hr SIBO test , A Special CScan of Small intestines ( bowel), and another endoscopy w/ endo flip done by specialist that do that test . I’ve been diagnosed w/ Chronic Gastritis, Esophagitis, Class B GERD, Small Hiatal hernia, Diverticulosis, small flat polyps on my stomach lining. I belch over 2000 x a day or night . I eat so clean and healthy for years on end . I’ve tried over 50 Remedies, elimination diets, complete allergy testing including foods, Hypnoherapy, acupuncture, every pre and probiotic and every enzyme and everything on Amazon they make for gut health. I even got a medical marijuana card and tried some of the gummy‘s but hated the way it made me feel .
So I live on Ultra Pepto 8 yrs . 5 Gastro Drs and over 15 big and small tests . The Dr. At Mayo had same diagnoses in Oct , but had no reason why I’m sick after every meal and I blow up w/ so much gastric distress all the time . Then my intestines are so loud grinding that they wake me up in the middle of the night and then the belching and churning just are relentless. I even take Ambien 5 mg and melatonin to get to sleep and it wakes me up three hours later. Then fatigued during day from lack of sleep. Do my best to get up take a shower put my make up on do my hair do what I need to do around the house and run errands with my husband when I can but man it’s hard.
I also have an anti-anxiety medicine I take when needed. I hope this helps you understand, every day is a struggle. ;(

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did they test for gastroparesis? Stomach emptying test?

REPLY
rozy288 | @rozy288 | Mar 5, 2022
In reply to @nikkipooh79 "Hi! I have my first appointment in march and she said to plan for 5-7 days..." + (show)
@nikkipooh79

Hi! I have my first appointment in march and she said to plan for 5-7 days of testing. My first question…do they do testing on the weekends? Or are we talking 5-7 business days? Also…is there anything you did or wish you had done for your appointment that I should make sure to do? Background:
I was diagnosed with Crohns 18 months ago, but have unexplainable pain and gas combined with constipation almost constantly. Always worse when I eat. My dr doesn’t like the look of my scans and he feels there is something mechanical or motility wise going on. But the surgeon refused to do exploratory surgery so he referred me to Mayo. I’m really hoping to get some answers and get my life back! 🥺🥺

Jump to this post

Yes they tested 3 years ago w/ 5 hr Gastric emptying study . Results norm .

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