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@tml

I only thought about staying in the middle of last night. Emailed them but not an option now. Am always too tired now to make rational decisions. Waiting for shuttle to airport. I am changing doctors at home although still with same health system. Have an appointment next Tuesday. I have to go tomorrow for my final Velcade shot at the old place. Hope to never see it again! Just hope shuttle gets to the airport in time. Worried because got a request to change to 10:30. Already close at 9:30! How many other horrible things can happen!!! Maybe overbooked?

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Replies to "I only thought about staying in the middle of last night. Emailed them but not an..."

It’s great you have an appointment next Tuesday to get this next phase into action. You can say goodbye to the old clinic that left you with a bad taste in your mouth. 🙃 This is a good, fresh start for you, armed with a new treatment plan to get you into remission! Then you can progress with the stem cell transplant.
Do you know if this would be using your own cells or an unrelated donor?

For now, just try to relax. The shuttle will get you to the airport on time. I know this is an anxious time. Traveling always is. You’re at the mercy of someone else to take control. But these shuttles do this all the time and you’ll get there in plenty of time to make the flight. Try to find something positive in your visit, not ‘how many more horrible things can happen’. My mom used to tell me, “If you keep looking for trouble, it will find you. So look for something better!” She was right!

How long is your flight home?

Good morning! I just wanted to wish you good luck with your appointment today! I hope this new clinic/doctor/team jumps on board with the latest treatment plan and gets you the help you need. Your second opinion at Mayo gave you hope for a new start in reaching remission and having the stem cell transplant. You are strong, so stay positive! You’ve got this! ☺️
Has your new prescription been filled yet?