← Return to Want to talk about Multiple Myeloma: Anyone else?

Discussion

Want to talk about Multiple Myeloma: Anyone else?

Blood Cancers & Disorders | Last Active: Jul 1, 2023 | Replies (401)
Comment receiving replies
@tml

I do not want to go home. I need medications now. I do not trust them and have so much damage that should not have happened. I am to fly home today but wish I were staying here. I cannot sleep or cope. Always doing the wrong thing. I wish someone would help me since I always do the wrong thing.

Jump to this post

Replies to "I do not want to go home. I need medications now. I do not trust them..."
Lori, Volunteer Mentor | @loribmt | Mar 3, 2022

Oh gosh, I feel so sorry for what you’re going through. It’s miserable when you have to travel and not feeling well. Just get through this day 5 minutes at a time. You don’t know how strong you can be until strong is the only option. I know you’ll get through this!

I also know that you don’t trust your doctors back home. But didn’t you say that new meds are being sent to your home from a prescription through Mayo, though they’ll be sent from Florida? Meds usually arrive fairly quickly! That is your first step towards remission.

You were given treatment options from the doctor at Mayo, right? What was the outcome of that? Are your doctors back home aware of the 2nd opinion at Mayo?
Mayo Clinic is pretty good about providing detailed information for what the necessary next steps,. Do you have printed orders or information on your patient portal on how to proceed from here as far as appointments or what treatments to get when you return home?
I think you should call for an appointment with your current team and discuss your findings with them. My oncology team back home worked closely with Mayo Clinic to get me in remission. There was no chest thumping or second guessing. They all worked together for the goal of getting me to remission so I could get the stem cell transplant. Will you be returning to Mayo for the stem cell transplant?

Can you stay and be treated in Rochester? Did you discuss that possibility with your doctor yesterday?

I want to provide you with a calming exercise to use when you’re on the plane today. Before starting this exercise, pay attention to your breathing. Slow, deep, long breaths can help you maintain a sense of calm or help you return to a calmer state. Once you find your breath, go through the following steps to help ground yourself:

5: Acknowledge FIVE things you see around you.
4: Acknowledge FOUR things you can touch around you.
3: Acknowledge THREE things you hear.
2: Acknowledge TWO things you can smell.
1: Acknowledge ONE thing you can taste.

Wishing you a safe and quiet journey home. Will you let me know how you did on the flight?

VIEW AND REPLY