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Have MAC and coughing up blood
MAC & Bronchiectasis | Last Active: Jan 26, 2023 | Replies (33)Comment receiving replies
I was diagnosed about 16 months ago and Dr said no need to go on the meds, my body can fight it off on it's own, possibly (I need to research this). 16 months later, just got sputum results and I still have it. He said they now recommend anyone testing positive for MAC go on the antibiotics. BUT let me add - my two twin sisters are one year younger than I am and both also have bronchiectasis and MAC. One of them was 18 months into the meds and began to lose her vision. Hence my reluctance to go on the meds.
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lucie0948...We all understand your fear of vision difficulties. You'll have to weigh your discomfort and the damage MAC is doing to that fear. It is ethambutal that causes color blindness in one out of four people who take it for long periods. Hopefully, your sister is seeing her eye doctor every month as recommended or every other month and has stopped taking that part of the big three. We can make better suggestions if you'll answer a few questions. Are you and your sisters seeing an expert in MAC and bronchiectasis.
Are you coughing all the time? What supplements are you taking to soothe your discomfort? Are you using postural drainage?
Others will have more questions