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nancykay1888 (@nancykay1888)

Antisynthetase Syndrome: Anyone else?

Autoimmune Diseases | Last Active: Dec 28, 2022 | Replies (59)

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@wfwcooks

I have read thru some of the posts. My husband was diagnosed with interstitial lung disease after being in ICU for two months. Later we found out he has anti-synthetase syndrome. He has been on prednisone, antibiotics, CellCept since February 2021. He has been doing Rituxan infusion every six months. He’s had some improvement Not enough to get off oxygen or go back to work. I am curious to know if anyone out here has had interstitial lung disease and antisynthetase syndrome on oxygen and then able to get off oxygen and recover. He was 46 years old when diagnosed.

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Replies to "I have read thru some of the posts. My husband was diagnosed with interstitial lung disease..."

Welcome @wfwcooks. I moved your question to this existing discussion about antisynthetase syndrome:
– Antisynthetase Syndrome: Anyone else? https://connect.mayoclinic.org/discussion/anti-synthetase-syndrome/

I did this so you can connect with others like @nancykay1888 @jamieray6812 @tstefanelli @allie7764 @cbozzolo28 who can share their experiences with you and respond to your question about if anyone has been able to successfully get off oxygen and recover.

Does he use oxygen all the time?