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@atringas

My mom was told that she should have a surgery within 2 weeks of arriving at Mayo Clinic because radiation/chemotherapy didn't work for her. It's now been a month of additional tests and other appointments and no one is explaining why except for, "oh there was something I saw on your last test that I didn't like". She had numerous tests before arriving at Mayo and none indicated anything concerning. She didn't find out what her most recent biopsy was of until a day before the biopsy. The last biopsy she received doesn't even seem necessary for her surgery. And now they're telling her that she needs to wait another month before she can see an oncologist. Meanwhile she's in excruciating pain, taking lots of pain meds and barely sleeping. And doesn't seem to be getting very many answers. One nurse writes down her concern and says that another nurse will call her. Her scheduler just has nothing to say when she tries to tell her that another month is too long to wait, that she could be dead by then because of the fast growing tumor. It's all very frustrating because it feels like there's nothing any of us can do to get answers from her doctors and she could be dying for all we know.

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Replies to "My mom was told that she should have a surgery within 2 weeks of arriving at..."

@atringas, I'm very sorry to hear that you're not getting answers and explanations that you and your family need right now. I strongly encourage you to contact the Office of Patience Experience.

Mayo Clinic Office of Patient Experience
https://www.mayoclinic.org/about-mayo-clinic/patient-experience
Phone: 844-544-0036 (toll free)
Email: opx@mayo.edu

They can help mediate with communication. What kind of cancer does your mom have?