@tml As you said before, there are extenuating circumstances at play here. Having a genetic mutation that has caused your system to act differently than others they might have seen, your local medical team may not have had the background to fully work with you. I am proud you got to Mayo Clinic, and as @loribmt said, let Mayo take over leading the way.

One other thing to remember, is that while your numbers are now so dramatically different than before, there is a new set of lab machines and centers handling your samples to be tested. They can also make a pretty big difference. I know I have seen that in my lab results. Those from the "commercial" lab versus those from my cancer center's lab can vary in some critical results.

We are here in your corner, cheering you on and supporting you. Take those deep breaths, relax as much as you can. You got this!
Ginger