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@loribmt

Hi @tml I’m so sorry you’ve gotten this unexpected news. But please, try to remain positive because this doesn’t mean the worst outcome. You have the opportunity to start treatment to get this in remission again, and then have that bone arrow transplant.
I know you’re scared and feeling hopeless. I want you read these words that my transplant nurse whispered in my ear one night that helped bolster me forward. “The only thing stronger than fear is hope!” You need to carry that with you right now because it’s time to be calm and to make good decisions.

Will you tell me more about what you learned at Mayo? Could you have your treatment done at Mayo for the MM? If it’s not practical for you and you need to return home, just so you know, Mayo worked closely with my hematologist/oncologist back home. They made sure I was on the right treatment for my AML and then I went back to Mayo-Rochester for my bone marrow transplant. Will you have the opportunity to speak with someone at Mayo today about treatment options?

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Replies to "Hi @tml I’m so sorry you’ve gotten this unexpected news. But please, try to remain positive..."

Guess will have here as the place I will likely be referred back to the place that said I was not a candidate for a transplant.
If had there right after my remission not an issue. Not sure why. It was 5 months to get to remission before and each time harder in the body. Have had a horrible 2 months where I do not sleep. I know there is hope but I keep thinking of what should have been. Why did I not push for a transplant?