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Want to talk about Multiple Myeloma: Anyone else?

Blood Cancers & Disorders | Last Active: Jul 1, 2023 | Replies (401)
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@tml

Should have had a bone marrow right after remission. The disease has progressed way more than even when first diagnosed just in 5 months. Not on the right medication. Ratio has gone from 3 to 5 to 9 to 15 and now 22. This should never have happened. Said not a candidate for bone marrow where I go. Mayo says should have one but I now have to get back to remission I guess. So depressed I cannot bear it. Says referring me back home but to whom? Same players I was going to that denied me a bone marrow. Says will do at Mayo but every day I am losing time znd Hope,

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Replies to "Should have had a bone marrow right after remission. The disease has progressed way more than..."
Lori, Volunteer Mentor | @loribmt | Mar 1, 2022

Hi @tml I’m so sorry you’ve gotten this unexpected news. But please, try to remain positive because this doesn’t mean the worst outcome. You have the opportunity to start treatment to get this in remission again, and then have that bone arrow transplant.
I know you’re scared and feeling hopeless. I want you read these words that my transplant nurse whispered in my ear one night that helped bolster me forward. “The only thing stronger than fear is hope!” You need to carry that with you right now because it’s time to be calm and to make good decisions.

Will you tell me more about what you learned at Mayo? Could you have your treatment done at Mayo for the MM? If it’s not practical for you and you need to return home, just so you know, Mayo worked closely with my hematologist/oncologist back home. They made sure I was on the right treatment for my AML and then I went back to Mayo-Rochester for my bone marrow transplant. Will you have the opportunity to speak with someone at Mayo today about treatment options?

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