← Return to Rare serious side effect of Eliquis: Muscle weakness

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@colleenyoung

Welcome, @hulitoons. I can imagine that you just want this to be over. It certainly sounds like you need medical attention. Have you asked your doctors why more imaging studies are required? Might it be possible to have a telephone or virtual consult as a next step to get help with the immediate issues that are preventing you from being mobile? Please contact your doctor or consider getting second opinion.

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Replies to "Welcome, @hulitoons. I can imagine that you just want this to be over. It certainly sounds..."

[I did have one very short telehealth virtual call.  I haven driven a vehicle in over 30 years so my husband takes me to appointments.  I now have six doctors who work together:  cancer, hematologist, cardiac, spine, surgeons, gastroenterologist.]
After my first post here I was back in the hospital again the first week of April via ambulance (I didn't realize my husband called them because I was barely aware).  This time I was put through a variety of tests for a full week, given 4 blood transfusions along with two other medical transfusions at the same time (I had three intravenous lines).  I had an endoscopy and colonoscopy done simultaneously along with a medical stress test for my heart and blood clotting test was also done that continued to show clots.  I had to have blood draws every four hours.  My own blood could not gather or transport enough oxygen and I was actually losing blood so they searched for 'bleeding' but none could be found so another test to look at my small intestine will be done.  (Vitamin B12 was not an issue at all)  Over the course of a week I averaged 1-1/2 hour of sleep a night, which is common in hospitals when there are issues that have to be tested constantly.  It was found that I have Gerd, a hiatal hernia but my colon is fine except for hemorrhoids.  This anemia would have eventually caused death
Two weeks later I had a scheduled lung biopsy done because over the course of the 4-1/2 months I'd been told, after a number of earlier tests, that a nodule in one lung was cancer so I had a number of visits for this.  However, the robotic biopsy result said it was NOT cancer after the surgeon had them test another piece of the nodule again.  Thankfully whatever it is the surgeon removed it without taking out the lung lobe where it was located.  The nodule pieces were sent to a lab to investigate what it is.  I have an appointment to see the surgeon today after a chest x-ray this week and maybe I'll know more.
I have more energy now (I think the blood transfusions made a HUGE difference); I have an appetite and am eating; I no longer have dry-burning mouth and lips and I have SPIT!; I am now actually walking each day OUTSIDE with a Tall Walker so I can stand up straight and breathe.  

I'm back on Eliquis, and medication for Gerd and am feeling a lot stronger and better.