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Anyone here have Fuch's Dystrophy?
Eye Conditions | Last Active: Sep 1 12:35pm | Replies (106)Comment receiving replies
THANK YOU, TG, for answering. I, had a field of vision test about 3 weeks ago and the doctor said my vision improved. He showed me the print outs...and I'm going hmmmm...ok, if you say so! I don't feel that my vision in my L eye has gotten 'worse'... and so MUCH of how you see is 'in your mind'...of that I am positive. I got a little upset on another list after people were INSISTING that Fuchs is always bilateral and that I have it in the other eye, too. Well, then my doctor's are wrong.
I do the Muro5% 3 or 4 times a day and the ointment at night. I also use Ortho K daytime homeopathic drops...and right now I'm using the Systane Preservative free eye drops...because my doc said my left eye was SOOOOOO dry...so ok. Am doing that.
I am not an AMA-oriented person at ALL...take NO Rx's ...I'm 74 y/0...but it doesn't mean that I would be a fool and NOT 'go to the doctor' if I knew I absolutely HAD to...
I really do not think my eye surgeon handled the thing well. He should have SEEN the Fuch's BEFORE my surgery ... and he never really took his time...he wanted 'immediate answers' ...and so now I have to wear reading glasses and distance glasses, too. There are times, during the day, when my vision is 'clear'...others times when the blurriness in my L eye is predominant. Sometimes its just all up-ka-mixed! :)
I hope you will stay in touch. thanks and have a good day!
Bettyann
Replies to "THANK YOU, TG, for answering. I, had a field of vision test about 3 weeks ago..."
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Bettyann: I aam 79 and was Diagnosed with a 13 letter word that I only understood was inherited. A well-known surgeon removed my left cataract and did an implant lens. Follow-up visit were with various Optometrists, Eye Doctors.....By the second visit I said I did not see well, and was a bit concerned. At that time I was told I had Fuchs Dystrophy and a DSEK cornea patch could be tried or a corneal transplant. I lost it...no one had explained this and I also have auto-immune which was on the intake form. Immediately cancelled the right eye. I was told by a wonderful follow-up Dr. that I had a mild case. I use 6 dry eye applications and sometime a gel at night. Cant say I am better, but would like a new Opthamologist. I tried someone in the same practice (a monopoly) and he was wonderful. But the word it out(that I should stay the course with initial Dr. Need to go nearby by nearby is 40 miles away and not always sure they are good. That is why I am following discussions an worried I could get worse. I could use a great specialist in the cornea field near Akron to Cleveland to stay on top of this disease. I see you are doing well and if you have any suggestions. I, too, have tried the Muro myself and it gives temporary clearness. I see you had this in 2011 and certainly hoping you are doing well. nanzzi