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Questions about glioblastoma resection, radiation afterward

Brain Tumor | Last Active: Apr 11, 2023 | Replies (57)
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@tommydb

Unfortunately I do. I've done the entire round of chemo and radiation. Now, from home I do one week of chemo every month but triple the dose. No side effects yet. Next week I will have the "Optune " device put one on my bald head. I'm hopeful but my short term memory is junk. I'm guessing it always will be from here on out. So, for now I'm doing ok except for "where is my wallet" and stuff like that. I'll be back at mayo in a couple of weeks but so far so good. I guess I'll have to become a nerd constantly caring a note pad. My friend at work suggested notes on her iPhone but I haven't figured that out far. Weirdly enough I'm (was) an MRI tech. CT showed a normal brain but MRI a very different story.

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Replies to "Unfortunately I do. I've done the entire round of chemo and radiation. Now, from home I..."
Colleen Young, Connect Director | @colleenyoung | Mar 8, 2022

Welcome @tommydb. You may be interested in these related discussions about the Optune device.
- Glioblastoma (GBM) trials and therapeutic devices (Optune) https://connect.mayoclinic.org/discussion/gbm-trials-ttfields-brain-device/
- My Husband's journey with Glioblastoma https://connect.mayoclinic.org/discussion/my-husbands-journey-with-glioblastoma/

@suez5, would you mind sharing why you decided to discontinue treatment with Optune?

Tommy, I'm not surprised your short term memory is "junk". Carrying around a notepad is smart or on a phone if that works for you. I'm a big believer in taking notes even when short term memory works. Why clutter the brain. I use Google keep. I have it on all my devices, so I can take notes whether I'm at work or out with only my phone. If I'm device free, I take a note on paper and then transfer it when I get home so all my notes are in one place. It's a good practice to develop and my brain is free to think rather than trying to keep all the tasks etc in my head.

Are you at Mayo now? How is it going with the Optune?

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