Connect
← Return to Want to talk about Multiple Myeloma: Anyone else?
Discussion
Want to talk about Multiple Myeloma: Anyone else?
Blood Cancers & Disorders | Last Active: Nov 10 6:24pm | Replies (414)Comment receiving replies
Yes I have a list and scheduled 3 days not knowing as said 3-5 usually. I have my Velcade shots weekly so had to push off one day to get 3 together plus travel. I guess part of my pain is that I know when it happened as had pneumonia and then an X-ray. Pain in clavicle and was given a muscle relaxant. Pain disappeared. Later ended up with a little lump that when shown to doctors, none said get a biopsy so had no idea for a year and a half. I should have just gone to ER immediately! I would have caught it right away and likely saved myself all this. At first prescribed Revlimid but have poor drug plan and my cost almost $3000 a month.
Replies to "Yes I have a list and scheduled 3 days not knowing as said 3-5 usually. I..."
Connect
@tml Welcome to Mayo Clinic Connect.
@colleenyoung had tagged me into this conversation, but my apologies for taking a couple of days to respond. As both she and @auntieoakley mentioned, situational depression can be quite its own battle to deal with, especially in a health crisis like you are in. When you relate your history, and the delay/mispronounciations of issues by provider, it's more than enough for any one person to have to deal with! Having a social worker or therapist help you through will be a plus for you. It's hard for your husband to understand if he doesn't have the medical background or would prefer to think that everything is "really okay", when it's not, really. I have been there, done that in my multiple myeloma journey, too!
As for Revlimid. I am on that, plus dexamethasone. I applied though my cancer center's pharmacy, to Bristol Meyers Patient Assistance Foundation, for a grant to cover my co-pays. They needed tax return and financial information. but I was able to get that grant! My co-pay is $0 thanks to them. Here are a two links that you can research for co-pay relief:
https://copays.org/ Patient Co-pay relief
https://www.panfoundation.org Patient Access Network
Sometimes you need to think outside the box for your health! And wallet. What will you do today to relax before your trip? And, please come back to share when you want to, what happens at Mayo. We care!
Ginger