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@rickfox2676

I would like to thank everyone that took time to respond to my plea for help. To add further. My BP is dropping daily and stays around the 70/50 range. I've cut out all meds to make sure there were no interactions. The doctor prescribed Midodrine to raise my BP as so I don't black out or die but it only raises BP a few points. I am a severe diabetic but my diabetes has never caused BP issues. A HIDA Scan was performed but no results. I feel descent if sitting or lying down, feel like death is upon me when standing. Lose my breath, go black and slur speech. I was told possible Addison's Disease or Bile duct obstruction but no blood work or testing done.

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Replies to "I would like to thank everyone that took time to respond to my plea for help...."

Hi Rickfox2676 I can totally understand your concerns. I have suffered from low BP upon standing, walking and most anyother natural movements. Two events occurred, that my BP would not show on the BP cuff, resulting in ER visits. I have had syncope spells and near blackouts while golfing, walking, picking up trash and even while driving. Many times, I visited the VA Hospital and was told everyone's BP falls upon standing but your's is much more profound than average. Finally I resided in the hospital for a week and decided that Afib was the primary cause and I had a re-conversion. Even after that process after being put on Beta blockers and Blood thinners, I still suffer from this. I have had to quit playing Golf, Driving, or any sport or exercise where even fast eye movement is necessary. I have been fortunate, for I have fallen many times, but have not really injured myself. This has occurred the last 15 yrs of my life. I have been seeing an Endo Dr for about seven yrs and have been prescribed Cortisol off and on. Every Cortisol test shows borderline?? levels in my blood and my PTH level last test was 145 and the Dr said it should be watched??? Several of my Chemicals are out of balance and I have a blood test every 3 months. I get so frustrated when the Dr says I am a complicated case. I know that death feeling and it is no FUN. I wish you all the best and may your Dr determine some explanation!!!!

@rickfox2676 I. can only plead with the others that you invest in a flight (if indeed they are so far) to a top medical center, preferably the Cleveland Clinic or one of Mayo's branches. They will take you very seriously and do a thorough work-up. You just must advocate for yourself. Perhaps one of your daughters (or grandchildren if old enough) could go with you and help since you must have trouble walking. It's unthinkable that no one has checked your infection site and whether it has healed or in spreading. I believe Mayo (most large centers) have discounted housing for patients - ask social services. I know transportation and accommodations can be the most expensive part of journeys to health such as you must take.