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Gastroparesis or slow modility colon
I was diagnosed with gastroparesis with one doctor and he sent me to a bigger university for a pacemaker.
The next university said it was not gastroparesis. This doctor had me do a Sitz Marker Test and after 7 days, I still had 58 markers left in my upper colon. He diagnosed me with a slow modility colon.
For the past 9 months I have (and getting worse) severe abdomen bloating, cramps, pain, nausea, and now lower back pain. I have been on a gastroparesis diet for 6 months with no relief. I only eat frozen yogurt and cracker for lunch. I wait to eat a more bland diet when I get home from work, knowing the bloating and nausea will get worse.
I now can only wear dresses, no pants, due to the extreme bloating and then discomfort of anything tight around my abdomen. Now I have gained 5 pounds in the last week with the same diet I have been on for 9 months.
My doctor now has me on miralax and apple juice. (During the last 6 months I have been with him, I have developed constipation in the past 3 months. Something I have never had in my 60 years of age.) I can't drink apple juice or anything except water due to the fact it also makes me nauseas.
I have tried Reglan, which made me suicidal, and erythromycin, which did not help.
Anyone have these same symptoms or and suggestions of what to do next. The doctor said I may just have to live like this. I am a very upbeat, positive person, but I can't imagine there is not something wrong to start the symptoms just in the last 9 months. I will take any help! Thank you so much.
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i drink lots and lots of fluids. fiber is tricky with gastroparesis. since thing can sit in the gi tract for prolonged periods.
it may work well for you.
I have same disease as you. I stopped my expensive prescription Med and use a mixture I was given by a Physical Therapist. 3/4 cup prune juice, 1 cup oat bran and 1 cup applesauce. Two tbsp before bed and a small amount of milk of magnesia saline. I now, after 3 years, have regular bowel movements.
I do stay on a diet and don’t eat for 3 hours before bed.
i'm ok. i went this morning. thanks though.
I have had post operative gastroparesis for about 7 years.. I am male, now 84 years old.. Mayo MN gave me a way to cope with the associated problems.. I drink a lot of Pedialyte, drink Kefir each morning.. I can even eat celery if taken in small bites not more than 1/2" in length.. leafy things are a big problem but the stem parts of Napa cabbage or Romain work well with no problem.. for me the rate of eating anything is for the most part what causes problems.. This morning I enjoyed oatmeal with blueberries, strawberries, and almond slices.. when gaining weight not an issue but is the ongoing wish.. I can eat calories with abandon.. Ken
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1 ReactionBrenda is this related to my situation or Eileen. This is hard to belief, trust me it has been for me but since acdf 3 fusion surgery done June 2020 I NEVER pass anything formed. So, it’s diarrhea to move something or stop all meds. I have stopped many many times since 2020 and get to 15 days without going to the bathroom. I ended up in the hospital. Now, I won’t go more than 5 or 6. I bought an enema system used for coffee enemas but I don’t use the coffee. I put two to three cups distilled water in and hold as long as possible to hopefully soften anything there. My problem is my stool gets stuck in traverse colon so way at the beginning of the colon where it empties from small intestine. I have severe motility issues. It’s just very odd because it happened after very long surgery. It was 6 hours and it was done through the front of my neck. Import never that controls bowels is right there. I think anesthesia and possibly the nerve is the issue but no one can do anything except say remove entire colon. I’m not. Joanne
I do not have any blockage. Have Gastroparesis. I use mixture of oat bran, applesauce and prune juice. Yep tablespoons before bed and milk of magnesia saline also before bed. I don’t eat meat, dairy or raw veggies or raw fruit.
I eat chicken and fish but never fried.
I use plant butter and drink cup of coffee in the morning. I take over the counter IBGUARD Pill before I eat and take a probiotic, Culturelle.
I wonder if this would help with severe colon motility issues. I eat no dairy,sugar or grain. I also eat baked chicken and white fish from time to time. I don’t eat anything raw either. My stomach emptying test I passed so I empty fine to next stage. It’s my colon that won’t function. I also suffer malnutrition. I’m on many prescription vitamins, high dose probiotic and b12 injections. My diet is not great but I do try. I try mixing it up as much as possible. Fiber kills me. What is mag saline and can you send that recipe again. I think I might digest applesauce, not sure about prune juice and that other item in your recipe. It could also be fine because it’s not a lot at bedtime. I stop eating at 4 every day and have breakfast 8-9am. Yes, I drown in water daily. Thanks Joanne
Never go over 3 days without a bowel movement! At this point bacteria will be growing on your food that you have not passed. At day 3, use Magnesium Citrate and a fleet enema. This will usually save a trip to the ER.
Mag citrate causes me to vomit for hours. That’s why I asked what mag saline was. I’ve been doing this routine, alone with so many other routines and my colon never functions on its own. I’m tired of it. Tonight I’ll take Philips milk or mag or maybe mag citrate but I will vomit for hours. I think that’s why it takes massive amounts to work because I vomit so much. I could never do this again every third day. I’ve lost a tremendous amount of weight from trying to empty my colon so often. My pcp, Gastro and natural team say 5 because of vomiting. I suffer terrible drug allergies as well. Thanks joanne
I don’t use fleet because tube hurts to insert. I buy disposable tubing to my stainless steel enema bucket. You need to think about the fact that a formed stool has not passed out of my rectum since early June 2020. I get pelvic floor PT for this.