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Concussion and it’s symptoms

Brain & Nervous System | Last Active: Aug 8, 2021 | Replies (22)

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@xyz23c

I was leading a peachy, symptom-free life until a concussion in April 2018. Now I have vibrations, occasional night sweats, memory and other cognitive issues, dizziness, light headed, fatigue, sleep disturbances, gut inflammation, irritability, etc. (everything worse starting days before menstruation). Because they were just annoying for months, I finally saw a doctor when they got stronger. Saw a couple of ENTs and said there was nothing wrong with my ears. January 2019 I ended up in the ER the day after a night of partying because i felt like I was in a scene from the matrix and going to pass out. The ER said it was vertigo. BS. I got misdiagnosed with epilepsy and hypothyroidism in the following many months. MRI fine, EEG fine, and endocrinologist tested several times and no hypothyroidism. Saw a Neurologist and he originally said Clonezapam for 6 weeks to 6 months. A year later I told him I wanted to get off because I was having suicidal thoughts and started having double vision. The neurologist just let his physician's assistant see me at that point and went through a few months of trying a couple of shots in the thigh. Total January 2020 to August 2021 on Clonezapam. I used google to get off of it over a week and a half because the doctor's office was unresponsive when i messaged in the portal I had too many suicidal ideations and needed to get off the medication immediately. After withdrawals, I started feeling much better. Double vision gone and ideations almost went away completely. I wanted to return to my active lifestyle before I was tackled and landed on in kickball. The day after Thanksgiving 2021 I did a 12 mile hike at Government Canyon State Park with one water bottle (mistake I regret). Since then I have had vibrations throughout my body in mostly inconsistent manner (leg around the knee never stops, however) and my GI system is wrong; I gained 20 pounds (was 105 when I left Clonezepam).

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Replies to "I was leading a peachy, symptom-free life until a concussion in April 2018. Now I have..."

Additionally, the neurologist sent me to vestibular testing (platform, spinning chair, water in ears, hearing test) and neuron-eye doctor and both said the problem was the brain. Nystagmus, uneven eye, latency, failed the warm/cold water ear test, etc. I felt the vestibular and eye problems improved when stopped medication.

@xyz23c, it sounds like you and your neurologist are investigating your issues thoroughly. I wonder if you might find any clues to help you find answers from the experiences shared in these related discussions:
- Internal vibration with "nerve firing" https://connect.mayoclinic.org/discussion/internal-vibration-with-nerve-firing/
- PCOS and constant body vibrating or pulsating https://connect.mayoclinic.org/discussion/any-clue/
- Has anyone experienced internal vibrations? https://connect.mayoclinic.org/discussion/internal-viberations/

Recovery from concussion can be a long road requiring a lot of patience with yourself.