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Problems After Hysterectomy: Abdominal Pain & Cramps

Women's Health | Last Active: Jul 21, 2023 | Replies (98)

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@robinw

After having a total abdominal hysterectomy (2009) as a treatment to relieve pain from what was diagnosed as adenomyosis & endometriosis - I still deal with chronic pain. It isn't as bad as it was presurgery - but, it does impact daily life and I deal with it 24/7. Scar from hysterecomy is almost looks like I had a c-section (but never have). Pain is always localized on the left side and often radiates around to the hip/pelvic area and often to the lower back/pelvic. After primary physician said likely scar tissue/adhesions - they didn't give much help to try to resolve pain. Last year went to another ObGyn for second opinion. Have been working with a physical therapist w/ minor results (pain persists). Went off HRT (which I had been on since hysterectomy) & was placed on Orilissa (trial to see if I might have leftover endo). Appointment coming up Thursday, Orilissa doesn't seem to be making any difference. Unfortunately, can't take OTC anti-inflamatories due to weak stomach.

Any thoughts or suggestions on avenues to explore? Really ready to get rid of the pain!

Thank you!

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Replies to "After having a total abdominal hysterectomy (2009) as a treatment to relieve pain from what was..."

@robinw All surgery causes scar tissue. You may be interested in this discussion about Myofascial Release which is a specialized form of physical therapy created by John Barnes. It can treat and loosen surgical scar tissue. Unfortunately, not all doctors are familiar with it, and often they don't thinks about the properties of living fascia and adhesions in it because in med school they study cadavers instead of living tissue.

> Groups > Neuropathy > Myofascial Release Therapy (MFR) for treating compression and pain
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

There is a provider search at http://mfrtherapists.com/

Have you heard about this type of therapy before? Would you consider trying it?

Hey! I'm so sorry ur still in pain I feel your pain so much. I had a total hysterectomy whenni was 26 in 3 different surgeries within 1 month removed my uterus first then I grew massive cysts on one overy had to go back in and remove that with tube then 2 weeks later I grew another one on my other overy so. Anyways I still have horrible pain it gets so bad that brings me to the ground and cant walk. I have been to many doctors for different opinions and I still have the pain that just seems like it lasts for ever. Last month I couldnt even walk or get out of bed cause the pain was so unbearable. I take a testosterone shot weekly and seems like it helps some days I cant take any kind of birth control pills cause my liver enzymes go way to high. I hope u find relief!

I had been diagnosed with endometriosis as a teen and told that I most likely would not be able to have kids due to having an unusually tilted uterus. Well I had 3 sons in my early to mid 20's the endometriosis calmed down but in my early 30's I got pregnant again. It was a very difficult and high risk pregnancy. I toughed it out and had a beautiful little girl this time. However, after delivery the endometriosis came back like a tsunami. My ob-gyn started me on shots. I think it started like every month, then every two weeks, then every week....finally he said no more. In the last mri you couldn't see my ovaries through the cysts. The pain was horrible. I wasn't really sexually active after the surgery but now that I'm in a relationship I am in constant pain during sex. It feels like my insides are being twisted.

Have you ever been told you have pelvic congestion syndrome? I have it plus endometriosis and cysts I just had a hysterectomy 2 weeks ago, but I also had coils placed a year ago for pelvic congestion syndrome. I'd look into it if I were you.