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Looking for recommendations of doctors with expertise in CMML

Blood Cancers & Disorders | Last Active: May 6 8:24pm | Replies (9)
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@joesim

Thank you, Colleen. I appreciate you very informative reply.
I recognize Dr Patnaik's name from his published papers including his recent 2022 CMML Review. I've also seen his Mayo profile but couldn't ascertain whether or not he saw patients or just consulted on their cases. I do see him as a top prospect for a second opinion. Perhaps @loribmt can clarify.
I was diagnosed this past September as CMML-0. Monocytosis, cytopenias as well as TET2 and SRSF2 variants being defining factors. Dysplastic or Proliferative subtype is not yet known. Currently wait and watch. As yet I am relatively symptom free but do expect that will change as the disease progresses. Like many with this diagnosis my age at that time will likely preclude a transplant.
When I do go for a second opinion, I expect it will be with a physician referral from my current hematology oncologist. I'm on the east coast but prepared to travel.
In the meantime, I'd love to hear any thoughts on CMML, those docs and trials from @tbone45 @jzier @cblowers1 and others.
Thanks again for your reply and helping.
Joe

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Replies to "Thank you, Colleen. I appreciate you very informative reply. I recognize Dr Patnaik's name from his..."
Lori, Volunteer Mentor | @loribmt | Feb 21, 2022

Hi Joe, I don’t have CMML but I did have AML, now in remission after a bone marrow transplant. So hopefully some of the other members Colleen tagged will respond and have some answers for your questions. But I have spent a great deal of time at Mayo-Rochester receiving treatment and met many hematologist oncologists during my stay.

I’m not sure whether or not Dr Patnaik sees patients either. There’s no harm with inquiring for an appointment with him though.
I’d have no hesitation in recommending any of the hematologist oncologists at Mayo Clinic. All of the doctors and their teams encountered in my almost 3 years of treatment are world class and relentless in finding answers. I’ve experienced first hand the flawless, collaborative effort between specialists during my leukemia battle and bone marrow transplant. Both my husband and I are so impressed with the outstanding care I receive.

Once again, here’s the link @colleenyoung provided to submit an application for a second opinion.
http://mayocl.in/1mtmR63

Do you have any questions about a possible visit to Rochester?

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