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Liver transplant - Let's support each other
Transplants | Last Active: 1 day ago | Replies (1617)Comment receiving replies
I am so happy that you survived that horrible ordeal. I do not mean to sound ungrateful in these posts, I am just very frustrated. I am aware that one of the main reason for a TIPS procedure is to combat varices and bleeding. That was not why I had mine, I have low blood pressure and had no sign of varices. The reason I had mine was because of large volume ascites. I was getting drained once a week of about 8 liters per week. (sometimes up to 10 liters) The transplant team decided that TIPS was my best option as it could stop the ascites completely. My frustration is that now I still have ascites plus edema that I did not have before.
Replies to "I am so happy that you survived that horrible ordeal. I do not mean to sound..."
@cybele65, I had ascites and edema before transplant. I wish I could offer some relief to you. I recently looked at my pre transplant notes that I kept, and I saw where at one time I had gained 7 1/2 inches around my waist. That was my 1sr paracentesis procedure. I needed repeat procedures up until my transplant. Walking became difficult for me, too. The best part that I made myself focus on, was the immediate relief after each draining, and the looseness of my extra large sweatpants.
Do you have to go any distance to get a paracentesis? Are they easy for you to schedule?
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My apologies @cybele65, I do know we all have our different health circumstances and I should have recognized yours. I know how miserable ascites are, so you definitely have my sympathies. Your gastroenterologist doesn’t have any solutions for your situation?