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Lost my ability to sleep and other serious issues

Sleep Health | Last Active: Jun 10 9:31am | Replies (98)

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@hello123yes

I'll start by saying that I'm really at a loss for words as to what my situation has developed into over the last 3 months. I'm making this post as hopefully I can find some direction from others.

I'm 31 years old, live in Canada and prior to my situation I was perfectly healthy. It all started on Nov 25 as I was stupid enough to smoke marijuana that night and 2 weeks prior I had started taking a supplement called "Lions Mane mushroom" that's marketed as improving mood and nerve health. That night I started to experience major insomnia to the point that over the last 3 months I haven't been able to sleep 1) without sleeping medication and 2) for more than 2 hours at a time. The first month in this journey I only was getting heart palpitations, loss of appetite, stool changes, losing my inability to sleep. Then the second month and onward to today I started getting internal body tremors, neck/head shaking, slight hand tremors, massive migraines, quivers in muscles, myoclonus jerking in hands and legs and feet, short term memory loss, inability to sit still, hallucinations, weak legs, loss of libido, loss of emotion, tight muscles, my balance being off, and numb/hands feet. The neck/head/internal tremors has made it very hard to even sit still, it's really chronic pain. I truly believe that the Lions Mane mushroom and marijuana had some adverse reaction to me that started all this. There's studies done on the mushroom that show it can affect the CNS in mice and as well I read some people having adverse reactions to taking it. There's no real human studies done on it and I was stupid to not really research it beforehand. I think because that day I took the mushroom in the morning and then the marijuana at night, the two seem to have caused these symptoms I'm getting because prior I didn't smoked marijuana often and I had just added the mushroom to the few health supplements I was taking in the morning. I don't know the science behind it all, but I can say for certain the inability to sleep started that night on Nov 25. It really feels like I did a science experiment on myself by accident. People can say it wasn't the mushroom or the weed, or that I'm crazy, but I know for certain that those were the only things I started taking in the two weeks prior to Nov 25. I'm certain some of my issues have to do with sleep deprivation, but it doesn't seem that I should be getting this many issues (especially the neck shaking and internal tremors).

I saw a neurologist today who looked at me and essentially I was laughed at when I told him all the issues I'm experiencing. I was told it was impossible to be experiencing all this then was told to see a psychiatrist. I have been seeing a psychiatrist after my issues started because I was referred to one when I went to the hospital about them and have been on Mirtazapine for a couple months which does put me to sleep, but yet my body wakes me up like clockwork after 2-3 hours. It's really frightening what's going on with me. I believe this issue is more physical than anything, but doctors keep saying "see a psychiatrist". I did a sleep study that proved I wasn't sleeping. I'm waiting to see a sleep neurologist on April 8, but the in the meantime it's so hard living with the constant sleep deprivation, internal/head tremors (my head feels like it's shaking), slight hand tremors, and inability to sit still. It feels like I really did some brain damage to myself from that mushroom consumption every morning and then smoking weed that night even though I wasn't taking heavy drugs or anything, it sucks feeling like I damaged myself permanently.

At the moment I'm looking for therapy to help me stay positive during this situation. I went from being healthy, working, and seeing friends to now mostly being stuck in bed due to sleep deprivation and the other issues I'm experiencing. My life has completely turned upside down. I'm losing relationships, people are thinking I'm going crazy when in fact I don’t really know what's going on with me except that I'm in physical agony every day.

Thank you for reading my post.

Does anyone have advice on what I can direction I should go? Should I look for another specific type of doctor other than a neurologist?

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Replies to "I'll start by saying that I'm really at a loss for words as to what my..."

I am very sorry to read your post, understanding how you feel well.
I had a healthy life until 2017, when all of a sudden I had troubles with sleeping. After treatment with psychiatrists, I finally got the right diagnosis: epilepsy. It is known that epilepsy affects one's sleep. With my treatment for epilepsy, my sleep has been improving. But as I have already shared in another post within this group, something that has helped me much in difficult times was Yoga Nidra, also known as yoga sleep. Scientific studies on this yoga practice have shown that 30 minutes of yoga nidra can correspond up to 3 hours of deep sleep. This is what has given me much strength at those difficult times. I practice yoga nidra from the Insight Timer App, but you can also find some practices from Swami Satyananda (father of the modern yoga nidra) on YouTube, such as this one: https://www.youtube.com/watch?v=jPTRzOxmbZ8
Don't give up. All the best to you!
Santosha

Insomnia is awful; and I can appreciate your circumstances as I share it. I’m 10 months in from a cold turkey withdrawal from many years ethical use of benzodiazepines, i.e. prescribed. That’s 10 months only sleeping from 2 to 5 hours (if lucky), often stitched together in 3 sessions. I have seen neurologist, psychiatrist and psychologist; all confirm sleep problem - no solution,
only discovering severe anxiety, also affecting my gut.

Rather than reinstate benzos, last month I bought a bottle of vodka and tequila and began taking a shot or sipping, i.e. self medicating ~1.5 hours before bed. It has helped to calm the racing thoughts and serious IBS (irritable bowel syndrome) and subsequently increased sleep so I am more functional now.

As for dealing with anxiety, there are a number of videos on YouTube by professionals and amateurs sharing insights. While drinking alcohol and engaging videos are not panaceas they have been pragmatic in getting some relief from the debilitating effects of sleep deprivation; also cheaper than doctors visits of no consequence. I feel it’s just a matter of some more endurance time until my baseline sleep gets much better. BTW, I otherwise don’t drink.

OMG I’m so sorry