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Multiple Autoimmune Diseases & Post Covid
Autoimmune Diseases | Last Active: Oct 12, 2023 | Replies (113)Comment receiving replies
I have all the same issues. I had an MRI without contrast and took a SAGE test, EMG, and nothing showed. I did have Fibromyalgia for about 16 years before COVID in Feb 2020. This is 10x worse that my worst days with Fibro. Every system and major organ has been affected in some way. No answers. I have a rheumatologist that is planning to retire and said he isn't staying current! No other rheumatologist in area take me because I don't have any dx other than Fibromyalgia, OS, and Osteprosis. I really feel I have something in autoimmune and Neurological going on. After a 10th wait I have an appt February 28th at a Post-CoV-2 Clinic. I prayer it is the beginning to some validation and help! My mom had Lupus, Sojourn. RA, and other major issues. Stay in touch to share info!
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Hi, @feb. wondering about you visit this week to the Post-COV-2 clinic. We’re you able to learn anything?
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@feb. Kathy, that sounds so difficult and frustrating! Are you working with your primary care doctor to try to figure things out? Would your current rheumatologist refer you to a rheumatologist that she knows, instead of you doing the searching? How about major medical centers or university hospitals in your area? Four years ago, when i got very ill, my husband picked up the phone and called UCHealth in Denver. Doctors there were much more knowledgeable.
Keep searching for a doctor while you wait for your appointment at the post-Covid Clinic. Will you do that and then let me know what what you learn?