1. < Breast Cancer

Ribociclib: Looking for information about efficacy and side effects

Posted by pbnew @pbnew, Feb 14, 2022

Cia. I came to Italy where my daughter lives for Christmas holiday after 2 Covid years apart and then stayed for cancer. It’s been a roller coaster ride since 12/21. I’m brand new this group and cancer. MBC to bones,recommended therapy is Letrozole and Ribociclib. I’m looking for information as to efficacy and side effects. Grazie.

Interested in more discussions like this? Go to the Breast Cancer Support Group.

Mentor
Chris, Volunteer Mentor | @auntieoakley | Feb 15, 2022

I hate to start a conversation with links but you asked for specific information regarding efficacy. The link I am sending you is for the manufacturer web site. There are possible side effects with any cancer treatment. Remember it is a risk vs benefit equation. Doctors who treat cancer are really risk managers for a high stakes game. Please try not to focus on side effects and report any that come your way. Please try to focus on your life and your family and enjoying this time.
Here is the link; https://www.us.kisqali.com/metastatic-breast-cancer/about-kisqali/overall-survival-results/
You said you are in Italy for your daughter, and then cancer. Wow Italy, if we have to have cancer, I might like to have it in Italy. Lol . Seriously though are you wanting to return home somewhere? How are you feeling? Does your daughter have a family you are enjoying?

REPLY
leeann66 | @leeann66 | Feb 16, 2022

Hello, I love Italy, lucky you!!!! I was diagnosed in 2020 at age 54 with MBC, spread to my bones and lymph nodes. I was put on Kisqali and Anastrozole July 13, 2020. Side effects were there for sure, but then calmed down after 4-5 months and were very manageable most days, then other days I changed up my schedule to allow myself to manage the side effects. Last December we learned that combination of meds were no longer working as the cancer has grown back in the same areas so now I’m on Afinitor and Exemastane and the side effects they bring, only 3 weeks in at the moment and so far so good!. I think there are side effects on all meds but there are also meds and other techniques for coping with the , and for me, as long as the meds are stopping the cancer, that is my priority and I will keep moving forward. My oncologist had told me at the outset that at some point the cancer would find a way around Kisqali and we would have to change to the next step in treatment. We had hoped for two years but it turned out they worked for only 18 months. Now I’m on the next step, and she told me when these stop working she has another plan, and then after that another plan. That keeps me focussed and hopeful, I hope the same for you. Stay strong!

REPLY
2 replies
Mentor
Chris, Volunteer Mentor | @auntieoakley | Feb 16, 2022
In reply to @leeann66 "Hello, I love Italy, lucky you!!!! I was diagnosed in 2020 at age 54 with MBC,..." + (show)
@leeann66

Hello, I love Italy, lucky you!!!! I was diagnosed in 2020 at age 54 with MBC, spread to my bones and lymph nodes. I was put on Kisqali and Anastrozole July 13, 2020. Side effects were there for sure, but then calmed down after 4-5 months and were very manageable most days, then other days I changed up my schedule to allow myself to manage the side effects. Last December we learned that combination of meds were no longer working as the cancer has grown back in the same areas so now I’m on Afinitor and Exemastane and the side effects they bring, only 3 weeks in at the moment and so far so good!. I think there are side effects on all meds but there are also meds and other techniques for coping with the , and for me, as long as the meds are stopping the cancer, that is my priority and I will keep moving forward. My oncologist had told me at the outset that at some point the cancer would find a way around Kisqali and we would have to change to the next step in treatment. We had hoped for two years but it turned out they worked for only 18 months. Now I’m on the next step, and she told me when these stop working she has another plan, and then after that another plan. That keeps me focussed and hopeful, I hope the same for you. Stay strong!

Jump to this post

I love how there are more and more tools in the box for us. MBC is not a short walk anymore. Thank you for posting here.

REPLY
pbnew | @pbnew | Feb 17, 2022
In reply to @leeann66 "Hello, I love Italy, lucky you!!!! I was diagnosed in 2020 at age 54 with MBC,..." + (show)
@leeann66

Hello, I love Italy, lucky you!!!! I was diagnosed in 2020 at age 54 with MBC, spread to my bones and lymph nodes. I was put on Kisqali and Anastrozole July 13, 2020. Side effects were there for sure, but then calmed down after 4-5 months and were very manageable most days, then other days I changed up my schedule to allow myself to manage the side effects. Last December we learned that combination of meds were no longer working as the cancer has grown back in the same areas so now I’m on Afinitor and Exemastane and the side effects they bring, only 3 weeks in at the moment and so far so good!. I think there are side effects on all meds but there are also meds and other techniques for coping with the , and for me, as long as the meds are stopping the cancer, that is my priority and I will keep moving forward. My oncologist had told me at the outset that at some point the cancer would find a way around Kisqali and we would have to change to the next step in treatment. We had hoped for two years but it turned out they worked for only 18 months. Now I’m on the next step, and she told me when these stop working she has another plan, and then after that another plan. That keeps me focussed and hopeful, I hope the same for you. Stay strong!

Jump to this post

Thanks for sharing your experience. I hope the second treatment works well and lasts a long time for you.

REPLY
Please sign in or register to post a reply.