Taking care of Mom: Most rewarding and difficult thing I’ve ever done

Posted by pstut @pstut, Nov 9, 2021

Good morning,
I have been reading these posts for awhile now but have never posted myself. At the end of June, my 76 year old healthy, vibrant mom was diagnosed with stage 4 lung cancer. It started in her left lung and has metastasized to her right lung, lymph nodes in her chest, right hip, tailbone and brain. Her only symptom was some shortness of breath which was so gradual that we thought it was allergies. I have been taking care of her since the beginning of July, living with my dad and her. My husband and 2 children who are still home, (we have 6 kids) help and visit us daily. All of our lives have been turned upside down. In the beginning, she had 5 radiation treatments to her hip/tailbone and 10 whole brain radiations. She started chemo on her last day of brain radiation. She had at least 14 lesions on the brain and her last scan showed 3-5 are still there. She has now had 4 chemo treatments ( alimta, carboplatin and keytruda). She is so, so weak and tired, absolutely no appetite and cannot do anything herself. About 5 weeks ago she developed a blood clot in her right lung that had broken off from blood clots in her left leg. She could not be on blood thinners because one of the brain lesions had hemorrhaging around it. They inserted an IVC filter that will hopefully stop any other clots from traveling. My mom is my best friend and it is horrific seeing her go through this and watching her decline in front of my eyes. I have two older brothers and they help when they can, but Mom wants me and I want to be with her because I know what is going on best, if that makes sense?? Her oxygen drops significantly on exertion - not sure if it is the blood clot, cancer or both?? Since she was diagnosed, we had our first grandbaby( they live 8 hrs away and we have seen once- (she’s beautiful :)), our oldest daughter got married, our Second daughter moved away to college and I took a year leave of absence from my job as a teacher. So many changes…..I am so blessed to have been able to do this and take care of Mom, but sometimes it gets difficult. I am thankful to have found this caregiving page…taking care of my mom is the most rewarding but most difficult thing I’ve ever done… I don’t want to lose her….

Interested in more discussions like this? Go to the Caregivers Support Group.

My mom’s birthday is coming up on the 21st of February… I’m really dreading it. It’s going to be such a hard day - I miss her so much. Any advice or tips on getting through a loved one’s birthday?

REPLY
@pstut

My mom’s birthday is coming up on the 21st of February… I’m really dreading it. It’s going to be such a hard day - I miss her so much. Any advice or tips on getting through a loved one’s birthday?

Jump to this post

Hi @pstut I know each of our journeys' in grief and loss are unique, but here is what I do for those special days when I miss my wife more than normal and certainly on her birthday and other significant life's anniversaries.

I write about a favorite memory/story I have of that day with her and share it with someone who knew her. I also often call one of her best friends and we talk about how much we both loved and miss her. I have long kept a basket on our living room coffee table filled with random, family photos. Not the best ones I've ever taken, just a bunch of those extra, old photos that always hang around in drawers, etc. I sit with that basket and look through a random handful of those pictures. I find it easy to lose myself in one or another of them.

I also cry a lot, but I know I grieve in direct proportion to how much I loved, so let myself have those good cries.

Strength, Courage, & Peace

REPLY
@pstut

So true. Thank you ♥️

Jump to this post

Remembering the warmth of your love in your memories is like s little visit with your loved one. A celebration of sorts. Helps to lighten the load of your grief. It's magical to focus on the ALL the positives and the shared GOOD times!

REPLY
@IndianaScott

Hi @pstut I know each of our journeys' in grief and loss are unique, but here is what I do for those special days when I miss my wife more than normal and certainly on her birthday and other significant life's anniversaries.

I write about a favorite memory/story I have of that day with her and share it with someone who knew her. I also often call one of her best friends and we talk about how much we both loved and miss her. I have long kept a basket on our living room coffee table filled with random, family photos. Not the best ones I've ever taken, just a bunch of those extra, old photos that always hang around in drawers, etc. I sit with that basket and look through a random handful of those pictures. I find it easy to lose myself in one or another of them.

I also cry a lot, but I know I grieve in direct proportion to how much I loved, so let myself have those good cries.

Strength, Courage, & Peace

Jump to this post

Thank you. Those are great ideas. I love to look at pictures and videos. We have so many special and fun(ny) memories… we always had laughs together. She was such a wonderful, kind, caring, welcoming person♥️🙏🏼🦋

REPLY
Please sign in or register to post a reply.