Anyone taken Evenity (romosozumab) for Osteoporosis?
Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.
Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.
Thank You @windyshores. I am leaning towards Tymlos. Does anyone know if there is co-pay assistance program with Tymlos?
Yes call Together with Tymlos. The application for Radius Assist is on the Radius site but Together with Tymlos will coordinate for you. If you are not on Medicare there may be other ways to discount, like coupons.
Does anyone have experience with Reclast?
Thank You!
Is anyone out there following any bone strengthening exercises? There are so many conflicting exercise videos out there. Would appreciate a link please. I do 30-45 mins walk at least 5 times a week. Just started doing weight bearing exercises but not sure if these are the right ones for osteoporosis.
Can you comment on why your doc does not recommend prolia? Thanks
I didn't ask because I don't want it. He just said "I would not use Prolia for you." Prolia affects a part of the immune system (Rankl inhibitor) and I have had cancer and have lupus. Also you cannot just stop it w/out something else. He may also have felt I was not a good candidate due to med sensitivities. Sorry I am not really sure. I now need bone growing meds but he will follow Tymlos with low dose Reclast, not Prolia.
If you do Prolia, you need to know what you will do afterwards because apparently there is a high risk of vertebral fractures when you go off.
May I ask what type of cancer? Or if the cancer left you immune compromised or taking immune compromising drugs? The doc here is recommended evenity followed by prolia…also very hesitant about prolia requiring it to be lifelong. I have taken 2 rounds of reclast previously, used quite often for cancer patients (you are likely aware), with no real issues. But now it is felt that I need a bone growth option and cannot take Tymlos.
Thanks for the post. Interesting that the trial results were published in 2018 and today's general recommendation is for a year of treatment as it seems to lose efficacy after that amount of time. Likely the insurance companies will not cover beyond a year. I plan to begin Evenity soon but am concerned about follow-up treatment such as Prolia.
Breast cancer. Why can't you take Tymlos?
Evenity seems to be a great medication. I would worry about follow-up later. There will be more info as time goes on. The same company that makes Evenity makes Prolia so maybe that is why docs are pushing it-? I have no idea what someone who has already done Reclast does after Evenity. As you know Prolia (Xgeva) is also used for cancer patients.