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Sjogren’s Syndrome – Introduce yourself and meet others

Autoimmune Diseases | Last Active: Dec 3, 2023 | Replies (621)
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@aalbb

I was diagnosed with Sjogren's about 15 years ago by my Ophthalmologist. MY PCP at the time disagreed saying the dryness in my eyes and mouth were from "stray radiation" when I was treated for oral cancer. About 7 years ago I was finally referred to a Rheumatologist and three years ago I was diagnosed with Lupus and RA as well. I continue to battle the periodic foul taste and the frequent waking up at night due to dry eyes and mouth. My dentist has really gone to bat for me and has me try every new product for dryness that comes out. Some work. some don't and some work for a while and then don't work anymore. I look forward to learning from you on this platform and hope I can share some of what I've learned as well.
Stay safe!

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Replies to "I was diagnosed with Sjogren's about 15 years ago by my Ophthalmologist. MY PCP at the..."
Becky, Volunteer Mentor | @becsbuddy | Feb 15, 2022

@aalbb Welcome. I don’t have sjogren’s disease but i sure know what it’s like to live with dryness. I live in Colorado so dry mouth and eyes can be real problems. Do you use a cool mist humidifier near your bed at night. Does your opthamologist have any recommendations for dry eyes?
It would be wonderful if you could share some of what you’ve learned with others in this discussion! What has been the most helpful tip for you?

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