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Lichen planus

Autoimmune Diseases | Last Active: Oct 2 10:07pm | Replies (98)

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@loribmt

Hi @mjt Oh you poor dear! Your mouth sounds so painful. You have my sincerest empathy trying to cope with that. When your mouth hurts it affects your entire body and takes you right down mentally, doesn’t it?

Unfortunately, having RA along with the infusions to treat it can lower your immune system’s ability to provide those all important white blood cells. I see your count is low and that puts you at risk for things like this. With your D3 level low, are you also taking supplements to elevate that again? it would really benefit you in the long run. I know it’s difficult to eat but do the best you can to boost your body’s immunity with antioxidant rich foods. Even if it’s baby food so that you’d don’t have to chew! Smoothies too, with fruits/veggies and protein powder.

It’s disheartening that dermatology appts are so far out! That would be your best source of help at this point. In the meantime we do have some current discussions with oral-lichen-Planus. If you take the time to read through these conversations there are several members who have dealt with this pain and found some solutions which have helped. @artist01 found relief with Protopic (tacrolimus ointment 0.1) which is a prescription ointment.
https://connect.mayoclinic.org/discussion/erosive-oral-lichen-planus/?pg=16
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https://connect.mayoclinic.org/discussion/oral-lichen-planus-3/
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https://connect.mayoclinic.org/comment/623528/
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https://connect.mayoclinic.org/comment/603864/
During my cancer treatments my mouth took a beating. Besides trying saltwater rinses, (1/4 tsp salt in 1 cup of lukewarm water-swish for a minute then spit), I also used several products by SPRY; toothpaste, mouth rinse and xylitol mouth mints. They contain no alcohol and are very soothing. Xylitol products promote natural healing in the mouth.
Another toothpaste to try is Arm & Hammer baking soda toothpaste.
Closys is another xylitol, alcohol free mouth rinse and Zellie’s xylitol Dental mints.
I really hope you find some relief soon. Have you tried any of the products I mentioned?

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Replies to "Hi @mjt Oh you poor dear! Your mouth sounds so painful. You have my sincerest empathy..."

@mjt I agree with loribmt Also I used baking soda mix in water after the saltwater rinse.Also at different times I used honey water but all this took several days to heal. Be patient but do get on a treatment plan yours or Dr,s Good luck