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Eagle Syndrome

Ear, Nose & Throat (ENT) | Last Active: Dec 6 8:32am | Replies (308)

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@kariheppner

Hello, I was diagnosed with Eagle Syndrome about two years ago. My ENT was great that dignosed me, but was going into retirement so referred me to another, ENT who basically asked me what I was doing there as I didn't need surgery and dismissed me. I continued to doctor for throat/neck pain, headache and feeling like there was something lodged in my throat, no one else agreed with the diagnosis as they didn't understand it so blamed it on my scoliosis. Started PT in August for neck pain and was just dismissed with not much succes, but did give me temporary relief. At the end of December, I went to a different ENT for tonsil stones (coughed up one over a 1/2 inch in diameter) and throat pain. He just said it was probably nerves in my neck and if I wanted to get rid of the tonsil stones I'd have to have my tonsils out. He also cleaned the wax out of my ears and saw a cyst in my right ear which he ruptured. Since he ruptured the cyst, I have had severe pain in my right ear. I went back to him a week later and he said it looked good. A month later after having intermitten pain and now a lot of pain in my right ear, throat and side of my face, I saw my regular physical. He gave me antiinflamatory medicine and said it was my TMJ. The meds are not working so trying to figure out what to do. I had forgotten about my Eagle Syndrome diagnoisis since no one else acknowledged it, but now with this flair up feel that's the culprit of why I'm feeling this way. Would love to find a doctor who could help with this pain, as ear, throat, neck, face and head pain are difficult to deal with and do anything. Thanks for any help in this matter.

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Replies to "Hello, I was diagnosed with Eagle Syndrome about two years ago. My ENT was great that..."

Hi @kariheppner, Welcome to Connect. I'm really sorry to hear the ENT that diagnosed you with Eagle Syndrome retired and referred you to another ENT that wasn't helpful. I wasn't familiar with tonsil stones and found some information that may explain why the ENT said you might need to have your tonsils taken out and also has some suggestions to prevent the tonsil stones from forming

Tuesday Q and A: Self-care steps may help prevent tonsil stones from returning:
-- https://newsnetwork.mayoclinic.org/discussion/tuesday-q-and-a-self-care-steps-may-help-prevent-tonsil-stones-from-returning/

@eastmas1 @ddmarie @boofinley @marjana and others may have some suggestions for you also.

I can understand why you want to follow up with the Eagle Syndrome diagnosis and I would do the same thing. Have you considered seeking help at a major teaching hospital or health facility like Mayo Clinic?