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Peripheral Neuropathy vs. Erythromelalgia
Autoimmune Diseases | Last Active: Dec 30, 2023 | Replies (47)Comment receiving replies
I only have Erythromelagia on both feet. The cream Rhofade that I put on my feet three times /day helps but only short periods of time, 2-3 hrs. At least I can go go my 2.5 mile walk every morning. The cream was originally made for Rosacea, a facial condition of redness and swelling. The cream is very expensive, my Rx insurance covers it partially. Have you seen a dermatologist?
I also have Sjogrens. Dry eyes and mouth. GERD and Raynauds. It’s all tied in under Sjogrens. I see a Rheumatologist at Johns Hopkins. I’m in MD . USA.
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Hello from Canada I used to use this website for months then other things in my life so havent been on for a while. I am wondering if I have Erythromelagia but of face and other body areas. So this is my first search. I cant seem to find my way around her any more so found your comments - thankyou and sorry to read about your issues. I have dry eyes and mouth but old dr would not test for; have a laundry list of other medial issues, peripheral neuropathy, cancer, glaucoma and c.diff. Been in my bedroom almost 2 years and started to see light at end of tunnel a few weeks ago and got outside now have burning ears and face but not bright red and not feet.... goes over my shoulders etc and its been a few weeks and worse every day. So if not here could you guide me to another section here please? Only saw nurse practitioner yesterday but it seems to be worse from mid afternoon to bedtime . she has no idea yet what it could be .... sorry if this is a bit all over the place but a long day an where I live, bedtime. thanks if you do have a chance to answer and hope i can find this page again tomorrow! Wishing you the best. 🌷