It’s the worst in my feet and legs. I saw all kinds of different doctors and specialists that didn’t know what it was. On a trip to the ER because the pain was so bad (no one would give me anything for pain) some random DR in the ER knew what it was immediately because his sister had it. Referred me to a rheumatologist with the diagnosis. The stuff they’ve tried doesn’t really do much. EM is odd because what helps one person won’t do anything for another. So unfortunately you’re likely in for some trial and error. The burning and swelling isn’t constant like it used to be. I’ve made a lot of life and environment adjustments to reduce flares. My EM resulted from idiopathic neuropathy.