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Peripheral Neuropathy vs. Erythromelalgia

Autoimmune Diseases | Last Active: Dec 30, 2023 | Replies (47)

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@drolker

I also have both , PN and Erythromelagia . It’s a constant daily struggle for sure. Both of these affect my feet from just below my ankles to the tips of all toes. My diagnosis is Sjogrens ( includes Raynauds both feet and hands) PN and Erythromelagia. I started with Raynauds in my late teens. The rest of it has developed over the years and I’m now 75. For the EM/PN I take Gabapentin. I also take Hydroxychloraquine, Mobic and Evoxac . I have been applying Rhofade cream to my feet three times a day for the EM. This helps for about 2-3 hrs. I also have “ cold socks” that I use when my feet are on fire.
I see a Rheumatologist at JHH. He is constantly researching for treatments for the Erythromelagia. The nights are the worst as it seems lying down causes the symptoms to flare. Showing the cold socks that I use to reduce the inflammation.

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Replies to "I also have both , PN and Erythromelagia . It’s a constant daily struggle for sure...."

Does insurance cover Rhofade? Does the Gabapentin decrease the redness? Sometimes I wake up in the night with my face hot red? Getting in the sun always aggravates it.