1. < MAC & Bronchiectasis

CT Scan Shows End Stage Bronchiectasis In One Lobe

Posted by Echo R @coco1970, Oct 27, 2020

I just turned 50 and have lead an active and healthy life other than being hospitalized twice when I was very young with pneumonia. In March I started having trouble with chest heaviness and just a general "not right" feeling in my chest. I recently had a CT scan and the findings were end-stage bronchiectasis in my right middle lobe. I will admit that I lead a busy life and have maybe not been so in tune in the last 5 years with subtle symptoms. My follow-up appointment with my pulmonologist is over a month away and I am terrified. Has anyone else been diagnosed with end-stage bronchiectasis? I know there is going to be no repairing this but will it mean a lobectomy?

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

jr2366 (Jennifer) | @jr2366 | Dec 28, 2020
In reply to @baz10 "ling123--I, too have not heard of bronchiectasis being described in stages. I was diagnosed with it..." + (show)
@baz10

ling123--I, too have not heard of bronchiectasis being described in stages. I was diagnosed with it 5 years ago, but nothing has ever been said about it being in stages. Glad that you mentioned this! Thanks. Baz 10

Jump to this post

What are the stages can you share

REPLY
tessa2 | @tessa2 | Feb 9, 2022
In reply to @coco1970 "Sue- Thanks so much for your reply. I can't tell you how much better I am..." + (show)
@coco1970

Sue- Thanks so much for your reply. I can't tell you how much better I am feeling after posting and reading replies from this great group. I feel much better about my future.

Jump to this post

I hv you in my thoughts and prayers. Take care.

REPLY
cmi | @cmi | Feb 13, 2022
In reply to @coco1970 "I just turned 50 and have lead an active and healthy life other than being hospitalized..." + (show)
@coco1970

I just turned 50 and have lead an active and healthy life other than being hospitalized twice when I was very young with pneumonia. In March I started having trouble with chest heaviness and just a general "not right" feeling in my chest. I recently had a CT scan and the findings were end-stage bronchiectasis in my right middle lobe. I will admit that I lead a busy life and have maybe not been so in tune in the last 5 years with subtle symptoms. My follow-up appointment with my pulmonologist is over a month away and I am terrified. Has anyone else been diagnosed with end-stage bronchiectasis?

Jump to this post

I agree with Beth & Irene. My Scans are read by doctors in Charlotte NC & the team at NJH in Denver CO. Each & every radiologist, ID doctor and pulmonologists sees those scans with their eyes, training & experience. No two see the exact same findings. Mine range from “moderately” “mildly” “improvement” “same” “progression”. Not the most comforting answers when not exact agreement is confirmed; however for me it is the reminder….science…medicine is not perfect…humans are only humans…and we are a complex combination of more than the mundane. Get as many opinions as you can, but you are the best and only judge on how well or not well you feel. Keep taking care of yourself and discern these opinions as they come in. Keep talking to this group.
Regina

REPLY
View MoreView Less
Please sign in or register to post a reply.