Mastectomy and breast reconstruction pros and cons?

Posted by kruzin @kruzin, Jul 8, 2018

Being treated for breast cancer, having a mastectomy and was wondering what people did for reconstruction?

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@pjrist70

yes, but the bigger risk is taking medications that will most certainly damage your body worse. I was not a diabetic until now. My sugar glucose was 82 and now after taking Anastrozole for 21 months I have type 2 diabetes and Diabetic Retinopathy in my left eye. No one told me this could happen. I was told I will lose my eyesight and go blind. Really? I am so angry. My oncologist didn't think to tell me about my glucose level because he's only concerned with the numbers in my blood that are related to breast cancer. Really? Big pharma is using us as ginny pigs.

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Please, please go to this conversation and post about this. I sent this link to another lady yesterday and maybe, you talking about it can help her too.
https://connect.mayoclinic.org/discussion/i-completed-all-treatments-for-breast-cancer-but-now-i-am-supposed/
I know that there are late effects from cancer treatments, you might want to mention how long ago you took anastrazole and for how long? Did you have other types of treatment as well?

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@auntieoakley

Please, please go to this conversation and post about this. I sent this link to another lady yesterday and maybe, you talking about it can help her too.
https://connect.mayoclinic.org/discussion/i-completed-all-treatments-for-breast-cancer-but-now-i-am-supposed/
I know that there are late effects from cancer treatments, you might want to mention how long ago you took anastrazole and for how long? Did you have other types of treatment as well?

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I was on anastrazole @ 3/4 of a year. Did anybody else get trigger fingers from anastrazole?

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I chose the DIEP flap procedure with my breast reconstruction. The word I would use to describe the surgery is brutal. I think, in part, this is because the procedure was emotional as well as physical. When a woman has traveled through breast cancer treatment, she’s tired. No, she’s exhausted, from the journey. And then there is reconstruction (if she so chooses). When we reach reconstruction, it’s a milestone. 😊. But this procedure can be very challenging. I remember breaking down after a month with abdominal drains….. my husband had to change the dressings since I could not reach them well enough. I remember sobbing that morning …. Emotionally (and physically), I was spent. That surgery was difficult for me after all the chemo and the double mastectomy. Yet, sixteen months later, my new breasts feel wonderfully normal. It’s my own flesh. I’m grateful for the plastic surgeon who helped me create a new sense of normalcy after mastectomy, and I’m grateful to have regained a part of myself back in the physical sense. Breast cancer (or really any cancer, I imagine) is about endurance. And though our lives are forever changed from having gone through it, we have that opportunity to accept our new normal and move forward. And that includes new flesh-breasts, fluid-filled breasts, or no new breasts at all. I’m just grateful to be here. 🙏🏻

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@auntieoakley

Please, please go to this conversation and post about this. I sent this link to another lady yesterday and maybe, you talking about it can help her too.
https://connect.mayoclinic.org/discussion/i-completed-all-treatments-for-breast-cancer-but-now-i-am-supposed/
I know that there are late effects from cancer treatments, you might want to mention how long ago you took anastrazole and for how long? Did you have other types of treatment as well?

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have been taking Anastrozole for 21 months. I told my oncologist I was going to stop it. He didn't agree. If I take the Anastrozole for five years I have a 3% chance of cancer coming back in my body. If I only take it two years i have a 6% chance. I am having tremendous joint pain and my arthritis was never an issue before until now. Had a follow up with my gastrointestinal dr. and my stomach lining was badly inflamed which is another side affect. This medication causes trigger finger as well which is painful. Now I have diabetes which I never had before. My blood glucose started changing when I started taking the Anastrozole. My oncologist said nothing about it, he doesn't treat diabetes and they don't associate this drug with diabetes. I found on the Mayo clinic website that women over 60 have a high chance of getting type 2 diabetes.

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@pjrist70

have been taking Anastrozole for 21 months. I told my oncologist I was going to stop it. He didn't agree. If I take the Anastrozole for five years I have a 3% chance of cancer coming back in my body. If I only take it two years i have a 6% chance. I am having tremendous joint pain and my arthritis was never an issue before until now. Had a follow up with my gastrointestinal dr. and my stomach lining was badly inflamed which is another side affect. This medication causes trigger finger as well which is painful. Now I have diabetes which I never had before. My blood glucose started changing when I started taking the Anastrozole. My oncologist said nothing about it, he doesn't treat diabetes and they don't associate this drug with diabetes. I found on the Mayo clinic website that women over 60 have a high chance of getting type 2 diabetes.

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I'm 80, so you situation is probably different from mine. I tried several anti-estrogen drugs and they made me emotionally miserable. At my last check up, my mammograms showed no tumors present. I told my oncologist i didn't want to take the drugs and he said that was fine. He said I look healthy, feel healthy and at this point not to worry.

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@pjrist70

I asked about that but you have to have a specialist and none was available in my area. A very risky surgery. Are you taking anastozole?

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Had to give up on anestrozole devastating side effects. Pain Weakness. Hair Loss. And 4 trigger fingers. !!! Oncologist says arthritis. I say Anestrozole! What are your effects?

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@rhongirl

I chose the DIEP flap procedure with my breast reconstruction. The word I would use to describe the surgery is brutal. I think, in part, this is because the procedure was emotional as well as physical. When a woman has traveled through breast cancer treatment, she’s tired. No, she’s exhausted, from the journey. And then there is reconstruction (if she so chooses). When we reach reconstruction, it’s a milestone. 😊. But this procedure can be very challenging. I remember breaking down after a month with abdominal drains….. my husband had to change the dressings since I could not reach them well enough. I remember sobbing that morning …. Emotionally (and physically), I was spent. That surgery was difficult for me after all the chemo and the double mastectomy. Yet, sixteen months later, my new breasts feel wonderfully normal. It’s my own flesh. I’m grateful for the plastic surgeon who helped me create a new sense of normalcy after mastectomy, and I’m grateful to have regained a part of myself back in the physical sense. Breast cancer (or really any cancer, I imagine) is about endurance. And though our lives are forever changed from having gone through it, we have that opportunity to accept our new normal and move forward. And that includes new flesh-breasts, fluid-filled breasts, or no new breasts at all. I’m just grateful to be here. 🙏🏻

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@rhongirl, you're so right to raise the emotional aspect of reconstruction. It can be so emotional, and you're so spent from treatment and getting through.

I'm so glad that the outcome 16 months later is a positive one and you're happy with the results. With the benefit of hindsight, would you make the same choice again?

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I would love to hear more about decisions regarding reconstruction. There seems to be a few folks out there asking these questions.
What was your choice? Are you happy with the decision you made? Did your doctor agree or did you have to fight for what you wanted?

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@kruzin

I'm so glad you listened to your feelings, and it worked out for the best! I'm going to talk to my surgeon about this, but she sounds like I should just do the one, but we'll see. It's different when someone doesn't have this to say, and this is a business to make money. But I'm doing lots of research, and you've helped so much and I appreciate lots

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Hello,
I am 55 and before surgery I was stage 3 her2 with lymph nodes affected.
I had a bi lateral mastectomy and healed in 4 weeks to a point I was back at work with limited lifting.
I have PT and feel relieved that both breasts are removed.
Insurance covered all and will cover all reconstruction in the future. I have feeling on the skin of my breasts and also to the touch in between my breasts.
I laugh when I feel a draft!
I had skin sparing so I was not conservative!
Life ahead of cosmetics.

I am blessed to have family send amazing team of doctors.
Continuing with my treatment plan post surgery.
I feel back to my energy level 5 months out of surgery 7 weeks out of radiation and continuing chemo as preventative.
Living my life looking forward.

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@mari

I was on anastrazole @ 3/4 of a year. Did anybody else get trigger fingers from anastrazole?

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Strangely, I developed carpel tunnel syndrome. And it was not in the hand I used all day long to manipulate a ball mouse doing graphic design. After surgery (simple) I discovered it was a possible side effect!

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