← Return to My Husband's journey with Glioblastoma
DiscussionMy Husband's journey with Glioblastoma
Brain Tumor | Last Active: Oct 21, 2024 | Replies (174)Comment receiving replies
Replies to "I’m so sorry for your loss. Thank you for sharing your story, I’m sure it must..."
Try the Optune Cap through Novocure. Don't let the cost scare you. They look at your financial situation and put a cap on what you can be charged. The cap for us was $250 a month. To date, I have only been charged $250 once. I truly believe that during the 10 months he wore that, it was the reason his MRI's showed tumor decrease. Unfortunately, it stopped working and we desperately tried different chemos with no success. A change in diet helped too, I believe. Cutting out almost all sugar, no processed foods, no fast food, brown/wheat rice and pasta, sprouted grain bread, berries, avocado, green vegetables. If his MRI shows the tumor all contained in one area, the Duke trial may help. That sounds really good, but Otie's tumor had cells outside the nucleus so he didn't qualify. Look on your computer for trials and have the National Cancer Institute help you. They are very responsive. Work closely with your Oncologist so you always know what the next step will be if something doesn't work. Let me know if I can provide any other info for you or help in any way. I'm so sorry you are going through this. Enjoy every minute together and never give up hope. Stay positive! Sending love and hugs!!