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@colleenyoung

Gillysmom, you've been through a lot. I think you and other members would also appreciate joining this discussion about pacing yourself. I bet you'd have tips to add.

- How do you plan your day and conserve energy? Are you a Spoonie? https://connect.mayoclinic.org/discussion/how-do-you-plan-your-day-and-conserve-energy-are-you-a-spoonie/

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Replies to "Gillysmom, you've been through a lot. I think you and other members would also appreciate joining..."

I just checked out definition of spoonie No. I do not look well, and no one would believe I was healthy. I do not plan my day other than to take my weekly gamma globulin infusion, of order food from a grocery that delivers. My computer is my friend with info, games, movies, etc. Before the vaccine a year ago Jan, I was reading the Hashimotos posts on my Facebook page with compasion because I remembered what it was like to be lying in bed helpless. I knew there was a good chance of a resurgence of acute symptoms with the vaccine, but chose to take it because my son was so adamant. That acute or breakdown phase similar to the onset of the Hashimotos is happening again., preventing me from functioning at all. There is no fighting it. My most serious disease is my suppressed immune system, so the weekly infusions are critical to keep me alive. The others will eventually be treated when and if I have enough strength to do so. RA is treated the opposite of a suppressed immune system, and so far the ankle pain has been minimal. I did fight the malaise for a few weeks and ended up with an autoimmune response of vertigo that was resistant to treatment, and am suffering some effects from it. My best bet right now is laying low, treating symptoms, staying as healthy as possible, and checking everywhere for possible solutions. when I have the energy to follow through without making myself sicker.