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@gillysmom

Living with two autoimmune diseases, I was extremely reluctant to get Covid vaccinated, but my son begged me to
"go for it" despite my fear of a new autoimmune reaction. I did one Moderna vaccine and have been mostly bedridden since Jan 2021. The two old autoimmune diseases are a suppressed gamma globulin response, for which I take prescribed 16 grams of Hizentra, subcu, which infusion I administer myself. I also have Hashimoto's thyroiditis, which has been in remission for over 20 years prior to the Covid vaccine. On the day of the first shot, I noticed my right ankle looked weird, swollen. There was a pocket of fluid, looked like about one ounce on the side of the ankle. I immediately went on a water fast. Also I stopped the Hizentra to give the vaccine a chance to develop antibodies. This was not enough to explain the huge number of infections that took over in the next two weeks. My immune system was being "attacked" in an autoimmune response, with all my earlier infectionTs exacerbated simultaneously. I had double kidney infections, left ear infection with so much pressure, it felt as if my ear drum would burst. Also where I had a bypass during open heart surgery to replace an arterial valve, I felt infected. About two weeks later, my urine turned dark and stinky. At this point I felt so sick I couldn't get off the bed. My house had just sold, and I couldn't move off the bed, never mind mover out of my house. I was too sick to go to the doctor, and my doctor's office did not respond to my multiple phone calls for appointments. The new RA never went beyond the inflamed ankle, and these symptoms were not I. But an ANA test a full year later showed that my numbers were in the very high range. I was slowly winning the atte with the infections, but the worst part of what was happening was the loss of energy, like a huge black hold sucked it all up. This was a 180 degree shift from hte morning of the Moderna vaccine one. To make matters more complicated, I had also had a SARS, which was as severe as Covid, with a year of recovery and the loss of hearing in my left ear, and shifting energy from that of a middle aged person to one of my real age of 88. The SARS was the beginning of my decline, but I did recover, and within the month I took the Covid 19 mOderna vaccine. At 89, it was just too much and the antibodies took over my body. Also, I had no medical support. I am fairly knowledgeable about antibiotics, colloidal silver, and herbs, and am supporting my won recovery until I am strong enough to make my medical appointments. About a year after the vaccine, I sold my house again, and my son came from Virginia to help me pack out and move into his house. I am off the antibiotics, but still bed ridden, weak, exhausted, short of breath, and searching for answers. Treating the immune problem is just the opposite of treating the RA problem. But without medical advice, I am just trying to stay quiet and keep my spirit strong, and be ad healthy as possible. I have cut out dairy, gluten, and most sugar. However I eat fruit. I stay as organic as possible, but buying prepared foods means I cannot do exactly what I want.

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Replies to "Living with two autoimmune diseases, I was extremely reluctant to get Covid vaccinated, but my son..."

Gillysmom, you've been through a lot. I think you and other members would also appreciate joining this discussion about pacing yourself. I bet you'd have tips to add.

- How do you plan your day and conserve energy? Are you a Spoonie? https://connect.mayoclinic.org/discussion/how-do-you-plan-your-day-and-conserve-energy-are-you-a-spoonie/