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Lichen Sclerosus: Any other women dealing with this disease?
Autoimmune Diseases | Last Active: Nov 12 9:01am | Replies (323)Comment receiving replies
My dermatologist and rheumatologist agreed on a course of treatment to treat LS which pretty much covers my trunk. I took my first dosage of methotrexate (MTX) (2.5mil x 6) last night. To be taken once a week. Folic acid daily. Wish me luck.
I’ve also found a dermatologist in my area who does have UVb light therapy but is currently not taking Medicare patients. Her office told me to check back in April. I will. Maybe by then I’ll know if MTX is working.
Also, I did a self-referral to Mayo and was called by dermatology department within three days. They didn’t have appointment for me but did give me the contact of Mayo affiliate in Atlanta (five hour drive).
Replies to "My dermatologist and rheumatologist agreed on a course of treatment to treat LS which pretty much..."
It’s been nine months now on methotrexate. I’m now at 20mg/week. It seems to have calmed down all the extragenital inflammation and stopped any new plaques from forming. I’ve lab work done every three months. My body seems to be tolerating the dosage.
Now, to see a GYN for my vulvar region. More fusing going on. I had trouble finding my urethra!
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@gingerbear22 - Methotrexate is the only drug that worked for my psoriasis - but it took six months to clear my skin completely. Unfortunately I had to go off it after about three years because my dermatologist said I cannot stay on it long term because I have fatty liver disease. Biologics have not been as effective on me so far.