As far as coping with what I have: it’s been very difficult. I never how I’m going to feel from one day to the next. When I have things/appointments I have to do I usually try to cram in as much as possible that day knowing I’ll be down that evening or next day anyway. Sometimes by the time I get ready to go somewhere I’m worn out before I leave the house. It’s a juggling act for sure. Im aware that there’s many other diseases that are are far worse then what I have and I feel lucky that it’s not a terminal disease like an aggressive cancer. It’s all relative. I try to keep a positive outlook and keep myself as busy as possible with my hobbies- cooking/baking, puzzles & playing games on my phone.