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DiscussionRheumatoid Arthritis (RA) - Introduce yourself and meet others
Autoimmune Diseases | Last Active: Sep 24 3:33pm | Replies (878)Comment receiving replies
Replies to "Hello @lbo615 Don’t you just love doctors who tell you its all in your head or..."
https://rarediseases.info.nih.gov/diseases/7304/palindromic-rheumatism
As far as coping with what I have: it’s been very difficult. I never how I’m going to feel from one day to the next. When I have things/appointments I have to do I usually try to cram in as much as possible that day knowing I’ll be down that evening or next day anyway. Sometimes by the time I get ready to go somewhere I’m worn out before I leave the house. It’s a juggling act for sure. Im aware that there’s many other diseases that are are far worse then what I have and I feel lucky that it’s not a terminal disease like an aggressive cancer. It’s all relative. I try to keep a positive outlook and keep myself as busy as possible with my hobbies- cooking/baking, puzzles & playing games on my phone.