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@lbo615

My story seems to be like many others. I have seen multiple specialists since 2010 with many fluctuating signs-symptoms. I have Palindromic Rheumatism and autoimmune mediated SFN and POTS. This form of RA is rare and I didn’t “fit” the norm. I was told that it was stress, anxiety, depression for a few years. That is a very hard thing to deal with when you know something is wrong but the Dr’s don’t take you seriously.
I’m now taking Methotrexate and so far so good. Not many side effects. I was put on a different med at first (hydroxychloroquine) but it affected my heart. Worst thing for me is the fatigue, exercise intolerance and the severe flares. I had to quit working in 2015 so that was a major life adjustment. Went through depression but have adjusted to my new norm. I have a mixture of the “invisible” diseases and so I don’t look sick. Good luck to anyone going through the diagnosis journey. It can be a long, frustrating trip.

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Replies to "My story seems to be like many others. I have seen multiple specialists since 2010 with..."

Hello @lbo615 Don’t you just love doctors who tell you its all in your head or that you’re depressed?! That seems to be the most common reaction that women get. I have not heard of Palindromic rheumatism—can you tell me a little more?
And, boy do i know what you mean about fatigue! I just took the dog for a walk and ended up in bed for an hour!
How do you cope with several different autoimmune diseases?