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Adult Langerhans cell Histiocytosis and CMML

Blood Cancers & Disorders | Last Active: Mar 16, 2022 | Replies (22)
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@hearttoheart1

How kind of you to think of me
I am not great today and yesterday
I had srarted to walk to the grave last week which I find comforting
I can get my walk done and it gives me a purpose to change the flowers and I like keeping the grave nice with fresh flowers
But I’m just so sad now,today
I have been busy doing lots of paperwork , finalising funeral payments etc
But he is greatly missed
I have decided to do a flower arranging course that starts online in March
I could then do my own flowers for my home and the grave
But today is a bad day
I’m doing my best
Knowing you are thinking of me so far away brings me comfort
Someone dear to you is looking after you today, with your little white feather🙏
Thank you 😘

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Replies to "How kind of you to think of me I am not great today and yesterday I..."
Lori, Volunteer Mentor | @loribmt | Feb 2, 2022

My dear friend, some days it’s all we can do to get through 5 minutes at a time. You’re doing amazingly well, I think. I love that you’re visiting Michael and making sure his flowers are fresh. Gardening meant so much to both of you and now it brings you a special comfort.
It’s really great that you’re going to take a flower arranging course. That will spark the creative juices and propel you forward. I think it’s important for you to get Michael’s greenhouse full of little green shoots, plants and flowers. It will symbolize new life and a personal growth while still being close to Michael. I have a feeling this will be a very quiet and very wonderful sanctuary for you. I’d love to see a picture someday. 🙂

And walking, well that’s been your solace for quite a while. It was just a little over a year ago when you first became a member in Connect and we talked for the first time. You’ve come so far since then and walking was an integral part of your recovery and control. I walk twice daily and feel down if I miss a day. It’s a way for me to focus and feel centered. I know it’s the same for you.

I do hope you know I’m here anytime you need to talk. I know I’ve mentioned it before but here’s the link again for our grief and loss support group. Sometimes it helps to talk with someone who is going through the same thing. https://connect.mayoclinic.org/group/loss-grief/

I found this today and it felt timely.
“Even now, as broken as you may feel, you are still so strong.
There’s something to be said for how you hold yourself together
and keep moving, even though you feel like shattering.
Don’t stop. This is your healing.
It doesn’t have to be pretty, or graceful.
You just have to keep going.” Maxwell Diawuoh

Sending you a gentle hug today. ♥️

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Lori, Volunteer Mentor | @loribmt | Mar 16, 2022

I couldn’t let another day go by without popping in to see how you’re holding up, my friend. I think this has been a long winter for you so I really hope there is the renewal of the season all around you with bright sunshine and spring flowers. Do you have a lot of spring bulbs in your gardens?
Have you begun your online flower arranging class? 🌷🌸

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