Hi Danielle- I'm so sorry that you 've joined our LyP club. Did the dermatologist do a biopsy. Do you have a really bad case of it. Methotrexate is a chemo drug and certainly wouldn't be my starting choice. Are you in the United States? I would definitely get a 2nd opinion. You didn't say how old you are. I am 56 now and misdiagnosed for 9 years because they didn't do a biopsy. Did they tell you what stage you have? I think I have Type a, but back then they didn't have stages. Some people get it worse than others. 3 recommendations - definitely get another opinion. I use Clobetasol when they itch. I have been in remission for a bit. I know what my triggers are. There is a group on Facebook called Lymphomatoid Papulosis- join the group. Everyone supports one another- it's really great. Some people take it in stride- you still have to live you life. Others flip out especially if their children get diagnosed. You can always post here as well on Mayo's site. See you on FB. Good luck! Kathy

Jump to this post