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Lymphomatoid Papulosis

Skin Health | Last Active: Sep 26, 2022 | Replies (68)

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@shewinning

Hello my name is Danielle! I jus found out I was diagnosed with Lymphomatoid Papulosis maybe 3 months ago. I thought it came from a dog I had that was sick but my doctor says not. I’ve been on this medicine called Methotrexate which some people heard about for almost 3 months. I haven’t seen any progress taking the medicine more spots have showed up lots at a time and the symptoms are not getting better. Also the ointment isn’t working eithter. At this point I don’t know what to do. Should I change doctors or what should I do about this??? Any suggestions or ideas of what I should take?

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Replies to "Hello my name is Danielle! I jus found out I was diagnosed with Lymphomatoid Papulosis maybe..."

Hi Danielle. I’m on Methotrexate as well and it is controlling my outbreaks at the moment. Perhaps you need a higher dose? They tend to start you on a lower dose and increase this until the breakouts subside. Although there is no cure and the methotrexate cannot stop outbreaks completely on the correct dose for you it should make them less severe. I have however seen mixed reviews about the drug so I’m guessing it doesn’t suit everyone.

Hi, do you know which ointment you were given? I got Clobetasol but they are made with different fillers depending on the manufacturer. Make sure it has no citric acid, as that could irritate ppl with already inflamed skin. Also try a warm (not hot) Epsom salt bath. That dried my rash up quickly.