← Return to What to do if you test positive for Covid and are immunosuppressed

Discussion
Comment receiving replies
@athenalee

Mycophenolate is known for having the potential for aggravating infections. So, a precautionary measure. I started taking it again yesterday, 1,000 mgs. I was off it 12 days. I’m getting labs done tomorrow…fingers crossed!

I have Sjogren’s Syndrome which causes neuropathy, muscle pain, and some other symptoms in me. A couple hours after I returned home from the treatment, my left foot started itching intensely and it became covered in hives. That went away after a couple hours, followed by both of my feet turning bright red…which is something that happens fairly regularly. The itching and hives was new though.

And, the numbness, tingling, and discomfort in my feet have increased. I also developed new numbness on my face. A similar thing happened after I was vaccinated. My neurologist says it’s a flare caused by my body’s reaction to the immune system boost.

Jump to this post


Replies to "Mycophenolate is known for having the potential for aggravating infections. So, a precautionary measure. I started..."

Good luck on the labs. Didn't know that about infections and Mycophenolate. These "wonder drugs" have all kinds of side effects, but we endure to keep the organs. There's always a price to pay for everything in life, I guess. Sounds like you've had a rough time. Here's hoping for improvements ahead.