Lower spine pain after robotic Prostate removal

Hi. At the one month mark I started having burning before/during/after urination. Feels like urethra but not sure. Flow seems ok. Sometimes will pee multiple times in a short period of time. Pain Pretty much all the time ranging 1 to 6 as it fluctuates. Seems to worsen with exercise such as a mile walk. I should mention that I had extreme pain from catheter during week right after surgery - doc speculated latex allergy). Just touching the urine collection bag or tube at times would cause incredibly sharp pain. I also have abdominal tenderness/discomfort now. No infection. Abdominal CT a month ago was normal. Bladder emptying scan normal. Am taking 2 Motrin 3x day and 5mg Valium 2x day (surgeon using as antispasmodic). Doc thinks could be “post surgery pelvic pain syndrome”. Feels like the main source of pain is penis and I wonder if catheter fiasco could have caused some problem. Seems very weird that the current issue did not start till 1 month post surgery. Appreciate any thoughts - the pain is wearing me down. Thanks much. DD

Hi. At the one month mark I started having burning before/during/after urination. Feels like urethra but not sure. Flow seems ok. Sometimes will pee multiple times in a short period of time. Pain Pretty much all the time ranging 1 to 6 as it fluctuates. Seems to worsen with exercise such as a mile walk. I should mention that I had extreme pain from catheter during week right after surgery - doc speculated latex allergy). Just touching the urine collection bag or tube at times would cause incredibly sharp pain. I also have abdominal tenderness/discomfort now. No infection. Abdominal CT a month ago was normal. Bladder emptying scan normal. Am taking 2 Motrin 3x day and 5mg Valium 2x day (surgeon using as antispasmodic). Doc thinks could be “post surgery pelvic pain syndrome”. Feels like the main source of pain is penis and I wonder if catheter fiasco could have caused some problem. Seems very weird that the current issue did not start till 1 month post surgery. Appreciate any thoughts - the pain is wearing me down. Thanks much. DD

Thanks. I am trying desperately to get an appointment at Mayo. I realize that most doctors only treat symptoms. No dr here, and I have been to way too many, has ever tried to figure out how a physical very healthy male can go from lift weights and walking 10 miles per day to a cripple in 24 hours. I really think Mayo is my only hope. Thanks for the response.

I have been talking to a Dr about stem cell injections for my pain problems. Anyone here have any expectations with Stem cell injections?

Absolutely the same with my husband. Last time I saw him strong, fit was the day of operation, 2 years ago. Since then I have a cripple, who gets straight with difficulties and can not sleep because of the constant pain.

Stan,
Stem cell therapy for musculoskeletal regeneration conditions is making progress. Some treatments are available today and others in the near future (hopefully). You can read more about what Mayo Clinic is doing here:
– Regenerative Medicine https://www.mayo.edu/research/centers-programs/center-regenerative-medicine/patient-care/regenerative-medicine-therapeutic-suites

There is a great deal of hope and a great deal of hype about stem cell treatment. There are many fraudsters out there. That is why Mayo Clinic offers a free consult service. When you call the consult service, they will tell you about the availability of approved stem cell therapy at Mayo Clinic and elsewhere, and for what conditions. They can also tell you about research studies that are actively recruiting participants. Furthermore, you can add your name to a database to be notified when additional studies and information become available. You can learn more about the Consult Service here http://www.mayo.edu/research/centers-programs/center-regenerative-medicine/patient-care/clinical-services/regenerative-medicine-consult-service.
Or call 1-844-276-2003 to speak with one of Mayo's experts.

Absolutely the same with my husband. Last time I saw him strong, fit was the day of operation, 2 years ago. Since then I have a cripple, who gets straight with difficulties and can not sleep because of the constant pain.