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Lymphomatoid Papulosis

Skin Health | Last Active: Oct 11 4:13pm | Replies (69)

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@marilynnm

I am a 75 year old woman who has had LyP symptoms for 50 years. I finally got a biopsy. I don't understand why so many of us had to wait so long to be given a biopsy. Originally I was treated with prednisone, which led to prednisone induced diabetes, which then led to chronic kidney failure and then to dialysis. Prednisone was the only medicine that has ever been used for me. I believe, since it takes so long to do a biopsy, that this illness is not as rare as it may seem.

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Replies to "I am a 75 year old woman who has had LyP symptoms for 50 years. I..."

@marilynnm Marilyn, I just googled as I presume you have done. I did not fully read the article but saw that this manifests itself on your skin, is that correct. Why do they do a biopsy on it? It says it is very rare. Are you aware that there is a group on AOL called the "Cheetah Club"? It could be a good resource for you.

Here is the link I looked at, not really thoroughly though since I am need to get to bed.
https://www.clfoundation.org/programs-resources/newsletters/mff-forum-edition-1/lyp-the-missing-link
JK