← Return to Lymphomatoid Papulosis

Discussion

Lymphomatoid Papulosis

Skin Health | Last Active: Sep 26, 2022 | Replies (68)

Comment receiving replies
@kanaazpereira

Welcome to Connect @smgarner1,

It must have been so frustrating for you to have been misdiagnosed! We're glad that you joined us, and you've come to the right place here on Connect to find some answers.

Although they have different conditions, there are many members who have used methotrexate. @jerseygirl926, @crhp194, @lisa_sj99, @nancesti, @lorrainechavez, @debcha, @sherw, @emmur16, @sallyann, @luladavis, @rosestea, @julied838, @mswanda, would you share your experience with this drug?

There is also a great discussion on methotrexate here: http://mayocl.in/2h2kHZY

@smgarner1, how have you managed your symptoms for all these years? Do you notice any 'flare-ups' due to stress?

Jump to this post


Replies to "Welcome to Connect @smgarner1, It must have been so frustrating for you to have been misdiagnosed!..."

Thanks for welcoming me!
It's a good feeling to finally meet people that understand what I'm going through.
I noticed that the older I get, the worst it gets.
Yes, stress definitely plays a role in flare ups.
When I was 19 I was told I had a bad case of eczema. I used aveeno products, but it didn't hep.
When I was 36 a biopsy was done and i was told I had cutaneous T cell lymphoma. I used three type of topical cream, that didn't help either.
I just returned to the doctor, my whole file is gone, no record that I visited that doctor was found.
So they took another biopsy and I was informed that I have LyP.
So, all these years nothing helped control or manage the disease, I just learned to live with it.

I take methotrexate for aortic giant cell arteritis, starting in August 2016. To date, I have had no problems with this drug. It does make me feel sort of dragged out but this is quite manageable. I make it a point not to read the side effects of any drug unless I feel something. Otherwise, reading the side effects might make me watch too carefully.