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@joko

Taking you off Mycophenalte was a big step. That surprised me. I can't imagine UWMad touching the drug regimen. I have never been able to get them to adjust practically anything over the years. But i suppose each patient has conditions that require unique medical care. I'm taking 750 mg daily so I am interested. How long were you off the drug? Thanks for sharing. P. S. Did you have any reactions to the monoclonal antibodies?

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Replies to "Taking you off Mycophenalte was a big step. That surprised me. I can't imagine UWMad touching..."

Mycophenolate is known for having the potential for aggravating infections. So, a precautionary measure. I started taking it again yesterday, 1,000 mgs. I was off it 12 days. I’m getting labs done tomorrow…fingers crossed!

I have Sjogren’s Syndrome which causes neuropathy, muscle pain, and some other symptoms in me. A couple hours after I returned home from the treatment, my left foot started itching intensely and it became covered in hives. That went away after a couple hours, followed by both of my feet turning bright red…which is something that happens fairly regularly. The itching and hives was new though.

And, the numbness, tingling, and discomfort in my feet have increased. I also developed new numbness on my face. A similar thing happened after I was vaccinated. My neurologist says it’s a flare caused by my body’s reaction to the immune system boost.